Donation: An Act of Love
Jessica Dominguez, a proud Latina podcaster and member of the LGBTQIA+ community, is no stranger to organ donation. She has always been an avid supporter of it and believes, “Donation is an act of love. Among us, we can help us. If I have to leave a legacy in this world when I’m gone, I want to see other lives changed based on what I was once blessed with.” Like many who become donors, Jessica had no idea that she too would be given the chance to carry out someone else’s legacy.
For as long as she could remember Jessica has struggled with severe breathing difficulties due to a deviated septum. “People have no idea how much it can affect you,” Jessica attests, “But, take into consideration the fact that breathing is life.” For years, she was plagued with frequent headaches, exhaustion, congestion, and extreme sleep deprivation. These side-effects made it incredibly difficult for her to take part in the things she loves like swimming, running, and content-creating.
After enduring one failed surgery, due to lack of her own tissue, Jessica received a rhinoplasty that completely transformed her life. The donor cartilage she received during surgery, gave her the opportunity to, as she says, “feel alive again.” Prior to the procedure, Jessica’s surgeon told her that there would likely be a ten to fifteen percent improvement in her breathing. Post-op, Jessica reports that her breathing has improved by over ninety percent! She can now run, jump, laugh, and record her podcast without her deviated septum getting in the way. To her donor family she lovingly says, “God bless you, and God bless your loved one. You are extremely brave for allowing them to help others in this way. I’m so thankful and hope that he, or she, is resting in peace.”
Vanessa Herrera Prokop
Whether she is out for a run, dancing or partaking in Zumba, Vanessa Prokop has always worked toward an active lifestyle. But the Florida resident’s way of life was impacted after a match of human foosball — a life-sized version of table table-top soccer — took a turn for the worst in 2019.
During the game, Vanessa’s leg had buckled as it moved laterally and paramedics were quickly called. Although her high tolerance for pain allowed her to initially walk-off the injury and sustained mobility in the days that followed with a brace, Vanessa reaggravated her knee the following weekend at her children’s marching band tournament.
“Our team won and was headed to the finals, so we were all jumping in the stands and cheering,” Vanessa said. “As we’re all getting ready to leave I stepped off on the leg that was hurt and went completely down. I hit my head, my shoulder and my leg so hard that I didn’t even know what happened.”
A MRI was necessary to confirm the diagnosis, but Vanessa’s orthopedist was sure she had torn her ACL in her left leg. Her knee had become so unstable that walking down a flight of stairs had become a terrifying task, and Vanessa opted to limit most physical activities each day. Vanessa said she knew very little about allograft donations prior to her injury, and was briefly considering an ACL reconstruction with a portion of her own patellar tendon. However, Vanessa was hesitant about a procedure that would have required a second surgery site.
Countless meetings with doctors and hours of her own treatment research were held before Vanessa ultimately found herself corresponding with MTF Biologics. “I was definitely very intrigued with MTF Biologic’s process in how they cleansed the allograft tendon and preserved it in the way it should be,” Vanessa said.
Her surgery was scheduled eight months after she sustained her injury and the recovery that followed was longer than expected, as Vanessa’s doctor discovered a bone fracture in Vanessa’s knee during surgery. The newly identified injury left her on crutches for six weeks but Vanessa’s morale throughout physical therapy did not waver. She credits her husband and two teenage daughters for helping her throughout her recovery.
Vanessa, a registered organ donor, has the utmost gratitude for the gift of life her donor ligament has returned to her, noting how she can once again enjoy normal activities like dancing with her husband and daughters again. “I don’t know if I’ll have the right words,” Vanessa said in regards to writing a letter to her donor family. “I want it to be perfect, because it’s something that’s very special.”
Vanessa believes more people should be educated on becoming a donor and the benefits behind allograft donations. “I think education is very important and it’s what people don’t always get at the doctor’s office,” she said. “People need education on it, because I was a little scared before I looked into it and read more about it."
Personal Encounter with Tissue Transplantation Helps Scientist Step out of her Comfort Zone
Marzena Kononiuk and her husband are the proud parents of three beautiful children. She has worked as a scientist helping to develop new tissue grafts at MTF Biologics' labs for almost twenty years. While tissue donation has always played an essential role in her work, her love for the cause grew when she found herself on the receiving end. Marzena loves the outdoors. She enjoys taking in the beautiful scenery as she hikes and loves spending time on the mountaintops as she skis.
On a ski trip to one of Maine's largest slopes, Marzena hit a patch of ice. Her leg twisted as she fell, tearing three of the four ligaments in her knee. At first, her injury didn't cause many problems, so she opted out of surgery. But as time passed, her knee became more unstable. She reached her breaking point when her knee collapsed under her as she rushed from one parent-teacher conference meeting to the next. "I remember laying on the floor, and all these people were staring at me. I couldn't get up on my own, and it felt like an eternity until someone finally helped me up." The moment she got home, Marzena called her doctor and scheduled her surgery.
Recovery was more challenging than she expected, but her family showed her love and support to help her recovery go as smoothly as possible. Nine months later, Marzena was doing so well that she joined Team Liberty and participated in the Transplant Games of America in Utah - something she had no idea existed before her injury. Not only did she earned medals for competitions in pickleball and a 5K run, but she also met countless donor families and other recipients while building new bonds.
Following that experience, Marzena began stepping outside of her comfort zone and has spoken publicly about her experience and volunteered for donor awareness events at work and with her local recovery organization, the NJ Sharing Network. "I've always known that we help people, but it took my personal experience to get involved. I'm not a person of many words, but I get emotional when I think about what my donor did for me. He gave me a part of him so that I can fully live my life. No words could express how grateful I am to him. All I can say is thank you."
Hanging on by a Thread!
Erica Kirsch, a New York native, is an adventurous spirit. She loves discovering new restaurants with friends, hiking with her dogs, and playing guitar. A newlywed during the pandemic, Erica currently lives with her wife, A'Shanty, in New Jersey. Erica’s story began when she was in a serious car accident at the young age of nineteen.
The summer between her freshman and sophomore year of college, Erica was involved in a crash so severe that she was thrown out of her vehicle and damaged her right leg. Her femur was crushed, and her popliteal artery was severed. Following the accident, she endured several difficult surgeries: arterial bypass, numerous bone grafts, and more. Soon, Erica noticed that she was feeling some discomfort in her left leg. “I knew I probably had some damage,” she explained, “but compared to everything going on with the right leg, I told myself that I was okay and that I would deal with it when I had to”.
After a year, the swelling and buckling in Erica’s left leg became increasingly more painful. She booked an appointment with her doctor, who was surprised that she had been able to function so well, considering two of her ligaments were damaged – one was completely ruptured and detached, and the other was hanging on by a thread. Erica was worried that the doctor would not be able to fix her leg, but thankfully, with the help of donor tendons, he was able to repair the damage. Recovery was not easy. Erica endured several surgeries and a very lengthy recovery period, but she is now able to explore the city and experience the beauty of life without pain holding her back.
Erica had been a registered donor for as long as she could remember but had no idea that it would affect her personally. After surgery, she took time to acknowledge the opportunity she had gained because of another person’s sacrifice. She wanted her donor family to know that their loved one had positively impacted her life in a very significant way. “I have always been a donor for as long as I can remember, but now it's different,” she explains. “I do my best to spread the word. I want everyone to know how many people are touched by donation and how many can benefit from it. Because of tissue donation, my quality of life is better than it ever was before.”
A Mother's Journey with Loss and Hope
Heather Prutzman lost her 25-year-old son Joseph Savage from a motor vehicle accident in October 2017. “He was my only child and It’s always tough to lose a child in general,” Heather says. “But not to have any other children has been incredibly hard for me.”
Joey was always an incredibly outgoing individual from the moment he was born. “He was always the type where he would either go big or go home,” Heather says. And it’s apparent Joey possessed that mindset at a young age. Joey spoke with his mother about being an organ donor when he registered for a driver's license at 17 years old. During that discussion, Joey turned to her with a smirk and said, “After all I’m JSAV. Why wouldn’t I want that on my driver’s license?”. JSAV has been Joey's nickname since he was in elementary school. He has been so popular since he was little and he still continues to be and referred to as JSAV. In fact, our team name for the NJSN 5k is Team JSAV33. The number 33 represents his football jersey number which he had since he started playing when he was 8 years old.
That selflessness perfectly describes Joey’s colorful personality. Since his death, Joey’s donations have made its way to a number of recipients. His heart, two kidneys and liver have all breathed new life into multiple people, and his corneas even brought the gift of sight back to two men. Heather wrote to Joey’s recipients, but prayed to hear back from one more than any other — the man who received his heart.
Joey’s heart recipient was the first to write back, and Heather says it “was just like we always knew each other.” However, Joey’s gift of life impacted more than just those individuals. Over 120 additional recipients of bone, skin, and corneas received Joey’s gifts with Heather herself becoming one of his recipients in 2019. Heather was diagnosed with multiple myeloma — an illness where cancer cells accumulate in bone marrow — in June 2018, and the days since her diagnosis have been challenging. She explained how she has a history of back complications and how her cancer diagnosis worsened those symptoms.
“I have been in excruciating pain the whole year,” Heather says. I was in so much pain I was crawling on the floor.” Heather had six cervical fusions, and decided to call the NJ Sharing Network to reach out about Joey’s remaining tissue grafts prior to her lumbar fusion. The NJ Sharing Network reached out to MTF Biologics and there were only three left at the time. And her surgeon Dr. George Naseef understood the importance of Joey’s donation to his mother. “I just can’t say enough about Dr. Naseef... he’s just amazing,” Heather says. “He’s just another angel here on earth, because I’m walking because of him. He was a piece of the puzzle that helped me get better.”
Heather believes Joey gifted her the mobility in her back, knowing her love for riding and horses. She can now work toward returning to her love for equestrianism and her western pleasure horse, Gambler, who Heather’s “Florida family” gifted her a year before her diagnosis.
“Joey saved so many lives and he did that on his own,” Heather says. “I think about all these people waiting, hoping, praying and fighting to stay alive. He’s given me my quality of life back and I need to enjoy that as long as I possibly can.” Heather hopes to be back on the saddle after completing physical therapy, and looks forward to returning to the water to fish with her husband John.
“I would tell Joey he’s my hero,” Heather says. “I had his back for 25 years and now he’s got his mama’s back. He will always be my greatest accomplishment and there are not enough words to describe how proud I am of him. I am so beyond honored to be his mother, and I believe this was Joey’s gift to me to help me. To say, ‘keep going mom. You got this.’”
Tendon Donation Puts a Mother Back on Her Feet
When Kimberly Young arrived for a job interview at MTF, she knew the organization had something to do with transplants, and she was already on the donor registration list. Kimberly was the successful candidate for the position, but she had no idea that she would one day be a transplant recipient.
Kimberly loves racing dirt bikes. When she was 19, she took a bad spill and did substantial damage to her left knee. After an arthroscopic procedure, her orthopedist warned her that further surgery to repair her ACL was needed, but she declined. She thought that she was too young for surgery and figured a knee brace would do the trick, but the pain soon ended her racing.
Over time, a weakening gait and fear of falling led Kimberly to finally have surgery. Because of her work at MTF, she knew about allograft surgeries. At the time of her surgery in 2001, the donor tendons required to reconstruct her knee were in short supply. As the date of surgery approached, she worried that the surgery would be cancelled, but a local donation came through and her surgery was successful. Years later, Kimberly is doing great and has returned to some of her favorite sports. She loves skiing and playing tag football with her teenage boys, and she is so grateful for the ability to walk miles of hiking trails with her family.
Now, as Kimberly walks down the halls of MTF Biologics, she leans on her left leg when she stops to talk to others. “I lean on my donor for support now,” Kimberly explains. “Not only did my donor give me back my life, but my donor also saved my son’s life.” Kimberly was inside an ice cream parlor when her youngest son slipped out the door and into the path of a car that was backing out. As any mother would, Kimberly dashed between her kids, rushed out the door, and saved her son from the moving car. “Immediately, I thanked my donor. If it wasn’t for my tissue transplant, I couldn’t have gotten to my son in time,” Kimberly recalled with tears in her eyes.
Today, Kimberly continues to work for MTF Biologics and is a strong advocate for donation, sharing her story with others. She has also been participating in the Transplant Games of America since 2014, an event held every two years, that brings thousands of recipients, donor families, and supporters to participate in athletic and recreational competitions. “Participating in the games is another way I get to honor my donor for the generous gift I can never repay,” says Kimberly.
Placental Donation Gives a Veteran a Fresh Start
Anyone who meets Pete will tell you he loves to make people laugh. A Marine officer and proud father of three, Pete enjoys spending his retirement years gardening, cooking, and fishing.
A fishing trip took Pete’s life in a direction he did not anticipate. A simple pimple on his right leg near his ankle became infected after he stepped into the water. Before he knew it, the wound had grown to the size of a quarter and had become so debilitating that he could no longer walk without severe discomfort and pain.
As a veteran, Pete visited the VA Hospital where he receives most of his care. His wound was diagnosed as a venous ulcer and required treatment. Every week for the next ten months, Pete underwent every treatment imaginable for his wound. Despite various treatments, the wound would not get better. Pete began to lose hope. Finally, his physician suggested advanced treatment options that used placental grafts from MTF Biologics. Pete was skeptical at first, but was running out of options. “What do you have to lose? Nothing else has worked so far,“ exclaimed Pete.
Over the course of two months, Pete received 4 placental grafts and his wound progressed to closure. “I had no idea that you could put a placenta graft on a wound and it would heal,” remarked Pete after seeing the results.
Weeks after his wound treatments were completed, Pete felt like a new man. “I never thought I would enjoy saying this, but I love being able to shower again – something I couldn’t do before because of my wound.” Pete has now moved to another state to be closer to his son who is a nurse. He enjoys being able to move around again, and he is now so active that he has lost over 40 lbs. Pete is waiting to have knee replacement surgery, and he is grateful for the donated placental grafts that provided reprieve from his condition.
He wrote letters to his donors’ - mothers who generously donated the placental grafts that helped him heal. “All I can say is thank you. You have really changed my life. I could barely walk before, but you have given me hope through your donation.”
Rejoicing on the Road to Rapid Recovery
Veronique is a clinical researcher and active sports enthusiast who enjoys cooking soul food for her teenage son, volunteering with non-profit organizations, and working as a community activist on issues affecting African-Americans in her community. However, the fast pace of her vibrant life came to a screeching halt one unexpected day. She lunged down to jump during a cross-fit class but heard a loud pop as she landed. Her right knee buckled and swelled. The pain was excruciating.
Veronique was later diagnosed with a torn anterior cruciate ligament (ACL), so her surgeon recommended using allograft tissue for the transplant she needed. “Working in my prior role as a tissue recovery specialist, I knew the importance of tissue transplants. But becoming a tissue recipient, I got firsthand knowledge of just how much allograft tissue can accelerate healing time. It was a beautiful thing to see and experience,” said Veronique.
Twelve weeks after surgery, Veronique recovered full range of motion in her knee. Day-by-day she regained the needed strength. Soon, she was even able to begin playing softball again. “I have always believed that organ and tissue donations change and improve lives. I now have full range of motion of my right knee and can do the things I love to do again—hanging out with my teenage son, staying fit, and doing volunteer work that gives me life. This new bond that I now have with my donor—I will carry it with me forever.” Veronique is forever grateful for the selfless gift of tissue donation.
Donor's gift enables Donna to continue serving Veterans and Donor Community
Life sometimes takes you on circuitous routes right back to where you belong. After working for Executive Leadership in Donor Services at MTF for 8 years and developing a deep compassion and respect for donor families and the power of organ and tissue donation, Donna and her husband were transferred to Maine. It was there that she found her calling working as a recreational therapist for a Veteran’s Home in Maine. In Donna’s presence, one always feels extraordinary energy, and inevitably there is laughter. In addition to entertaining her friends, family, co-workers and ‘her veterans’ with her wit, Donna loves to spend time helping others. What irony that her desire to help others led to Donna needing the gift of a donated tendon to get her back on her own two feet.
Hoping to become a volunteer for an organization that helps adults and children with disabilities experience outdoor activities, Donna decided to ramp up her ski skills with some private lessons. Unfortunately, right after the lesson, she took a tumble and injured her knee. Laughing, Donna adds that shortly after that, she fell down the stairs to the parking lot. So, while she would like her story to be based on a dramatic athletic injury, she admits it could very well be due to a clumsy trip down the stairs. Surgery soon followed, and Donna feels extreme gratitude to the donor and the donor family who provided the tendon that allowed her to get right back to her very full life, and back to helping others.
The outdoor adventure volunteer experience was out, but Donna believed she had found her true calling as a recreational therapist for seniors who served in the US Military. Known as a cruise director at heart, Donna lives life to the fullest providing fun, social experiences for older Veterans, dedicated to making every day count!
Who would guess that another job transfer would bring Donna back to MTF Biologics, again supporting Executive Leadership, this time for the overall organization. “I now see how everyone at MTF, the donor families and the surgeons all form the fabric of Saving and Healing Lives”
Donna has brought her enthusiasm for helping others by being a strong advocate and volunteer for Team Liberty, the Transplant Games team for the NJ Sharing Network, and actively participates on various Committees at MTF. She is also still engaged in helping Veterans, and seniors or others struggling with disability.
Donna wrote to her thank her donor family “Had it not been for your loved one’s generous decision to become a donor, I would not be able to do my job to improve the lives of our Veterans. When a resident thanks me for assisting them with something as simple as a walk outside, I always remember it is because of my donor. My donor allowed me the privilege of working with our Veterans, and now supporting the mission of the organizations who make it all happen”.Carpe diem!
Liz loves life and seizes each moment of every day. She is an active visual artist and entrepreneur. She splits her time between teaching private art classes, motivational speaking, running her “positivity through the arts” programs, and working at a local community college. She also cares for Shelby—her beloved dog. Liz’s vibrant life came to a screeching halt as she slipped and fell down some steps four years ago.
Struggling in anguish, Liz attempted to pull herself to safety. Her injuries were worse than she had imagined. X-rays revealed multiple fractures to her left leg, foot and ankle. Surprisingly, she had also sprained her right ankle. Liz worried about the impending impact her injuries would have on her fast-paced life. “Being confined for seven months was truly agonizing. As a widow with no surviving relatives, I endured because of my community of friends who cared for me in my town. Thanks to my village, my stubborn nature, and donated bone and skin graft from a very generous donor, my recovery was successful.”
Several surgeries later, Liz is finally back on her feet. "I've had three surgeries. Thanks to MTF Biologics, I’m back to my busy schedule," remarks Liz. Her experience brought the issue of donation and transplantation into renewed clarity. Due to her cultural upbringing in Puerto Rico, she was previously skeptical about organ donation, a challenge sometimes faced in Latino cultures. Today, things are different. “I have reflected on my experience and now see how wrong I was about donation. My heart is converted, and I am now a registered donor! I don’t know who my donor is or where they are from, but I am forever grateful for donor families like theirs. My donor is now part of the artist that I am.”
Retired CEO of MTF Biologics, now a grateful recipient
His tenure as President and CEO of MTF Biologics did not prepare Bruce for the fact that he would join the more than 8 million tissue recipients the organization has helped through tissue transplantation.
As a child, Bruce had significant dental work to fill multiple cavities. As an adult, he had root canals, broken teeth and eventually removal of two molars. Chewing properly became difficult so he made the decision to replace those molars with dental implants. Bone grafts were necessary in order to regenerate healthy bone growth, which would serve as a scaffold for the dental implants, and for Bruce, there was only one choice – MTF Biologics tissue.
The success of the grafts have provided a lasting result, enhancing his quality of life, enabling him to enjoy time with his family during his retirement years.
Fearless pediatric recipient beats bone cancer to save arm
In May of 2017, doctors diagnosed Dylan Vitucci with osteosarcoma, the most common type of bone cancer in children and teens. The osteosarcoma was discovered in her right humerus after Dylan suffered a fractured shoulder while playing soccer, just a few weeks before her eighth birthday. Although Dylan noticed some discomfort a couple days prior, it took a soccer ball striking her in that same shoulder to send her to the hospital. The injury quickly became a blessing in disguise for Dylan and her family as her doctors became alarmed when her range of motion didn’t return despite her fracture healing.
A biopsy was recommended and taken from Dylan’s shoulder in hopes of identifying why her arm had decreased mobility. Doctors were not immediately certain of the specifics concerning her cancer, but they were confident Dylan had a form of sarcoma. But Dylan never seemed worried, according to her father. “I think she knew she was going to beat it,” he said. “I don’t know how, but she had something over her that made her feel completely comfortable.”
A request from her surgeons came to MTF Biologics and they contacted all 30-plus recovery partners across the United States about the urgent need for an upper humerus graft, and her best match came from another pediatric patient that had died. Dylan endured an 11-hour surgery to remove the tumor and undergo shoulder reconstruction using the donated allograft along with other prosthetics. She followed her surgery with nine months of chemotherapy, and even spent her first day of third grade in the hospital receiving treatment. But thanks to tutors and even a video-equipped robot, she never skipped a beat.
This confidence Dylan possessed allowed her to power through some difficult moments. Throughout her recovery she faced a number of complications: a blood clot on the outside of her heart, a collapsed lung and a fungus infection throughout her bloodstream. Yet she and her family continued to live by the motto, “a smile can get you through your toughest day.” And they had. Dylan, who is a triplet with another older sister, frequently exchanged laughter with her three siblings throughout the duration of her recovery. Her sister Sydney would even station herself next to her bed holding hands when that laughter seemed too hard to come by. Before long Dylan was escorted back to school in style with the help of her local fire department, and was warmly welcomed by all her teachers and classmates.
Dylan is now cancer free and she is beyond grateful to her donor family’s generous gift of life, and MTF’s role in transplantation. “Thank you to my donor family for their special gift that helped me get better,” she said. “I now have movement in my arm which allows me to do all the activities I could do before I had cancer. I can now play soccer and swim again. It means everything to me that you were so nice to give me the gift of donation.” Dylan hopes her story reveals to everyone how much you can help and change someone's life through the act of donating organ and tissues.
Allograft tissue provides a helping hand for pain relief
The importance for organ and tissue donation was something that remained with Chris after he watched his mother die waiting for a heart transplant. He worked in orthopedics as a surgical technician, which exposed him to allograft and eventually brought him to MTF Biologics where he trained new technicians.
Years later, when Chris developed cervical osteoarthritis and began to lose sensation in his hands, he knew that only one tissue graft would be used in his healing and recovery – the one processed in the building where he had worked for over 20 years. Pain free and feeling his best, today Chris now lives in a place he calls paradise. He spends his days enjoying time with his loved ones and doing things he once dreamed of doing again - fishing, photography, and painting.
A man in motion
Will Calhoun was a man in motion. A physically active job, a busy parent, an active coach, and member of his church didn't leave him much time for sitting. As a carpenter, he was used to lifting heavy objects every day, and didn't give it much thought. But this time, something felt different. Immediately, he felt the pain in his neck which radiated down his left shoulder to his arm. He continued trying to work as usual, but a few months later, he began to feel numbness in his arms and shoulders, making lifting impossible. By the time Will finally saw a neurosurgeon, strength and sensation on his left side was almost gone and he was diagnosed with 2 herniated disks in his cervical spine. The evenings he spent passionately coaching special needs children in baseball and coaching a wrestling team would come to an end, as would the weekend fishing trips with his daughters. No longer able to work as a carpenter, the financial strains began to have an impact on his family. Surgery was the only option if he wanted to return to the life he once loved and to care for his loved ones.
Will's surgeon inserted a bone graft into the disc space to stabilize the cervical disc segment. Immediately following his surgery, the pain in his arm, neck and shoulders were instantly gone. Within 3-4 months, he was back to doing carpentry work and soon after was back to coaching again. Will later learned that the bone graft used in his surgery came from donated human tissue and that he could write to the family who donated this precious gift to him. In his letter to them, he expressed his gratitude for the blessings of the gift bestowed to him. "Your special gift and donation has allowed me to continue working and providing for my family, coaching, and enjoying precious weekends fishing with my daughters again. Something good came from the loss of this life, and I was the blessed beneficiary of this gift".
Regaining His Footing
Frank Perez is a family man. He is married with four wonderful children and a grandson. Frank loves being able to provide for his family, but after complications from diabetes, his entire livelihood was jeopardized. Frank spent most of his life as a heavy equipment operator and working in solar farms but had to stop when his left toes were amputated due to osteomyelitis – a serious bone infection which was complicated by diabetes. In 2018, Frank began to have problems with his right foot as well. He lost a big toe as well as his 2nd and 3rd toes from complications of diabetic foot ulcers that would not heal. He had always taken great care of his feet but spending 14+ hours a day on them took a toll.
In 2019, Frank noticed a new ulcers on the little toe of his right foot. His podiatrist began a familiar regimen of cleaning, irrigation, and standard medications. The treatments were not working, so Frank’s podiatrist discussed the possibility of amputation. He explained that if he amputated Frank’s little toe, he would likely need to amputate a significant portion of Frank’s right foot as well. Not wanting to take the risk, Frank opted to participate in a new study his podiatrist suggested as a last-ditch effort to save Frank’s toe, one that involved treatments with donated human tissue in the form of adipose.
While Frank’s initial prognosis was not good, to his surprise, his toe began healing within a week. “It was pretty amazing stuff,” Frank remarked. “I was dumbfounded by it.” About a month later, the ulcer on his toe was basically gone.
Frank is grateful for having received the donated tissue that helped his wound close. “Thanks to my donor who gave the adipose tissue that helped me. I am saddened for the family who lost their loved one, but some good came of it because they were able to help me.” Frank is now getting back into his routine and doesn’t let anything slow him down. “I can continue to take care of my family. I get up every morning and take walks, climb ladders, and can go fishing again.” Thanks to the gift of donation, Frank has regained his footing and looks forward to a vibrant life for many years to come.
You can view Frank's video story on our YouTube Channel.
Back on the List Again: Wound Healing Brings Hope for Organ Transplantation
Patricia Horwath and her husband Barry loved to travel even while she was awaiting a kidney transplant which was necessary due to her diabetes. Unfortunately, their passion for traveling was jeopardized after a leg injury resulted in the development of a non-healing wound on her foot. “She’s the most important thing in my life,” Barry exclaimed. “We’ve been married 47 years, and I want us to actually be able to do stuff again.”
After 10 weeks of unsuccessful skin grafts, her podiatrist tried placental grafts from MTF Biologics. The placental grafts accomplished just what Barry wished for. After three applications of placental tissue, her wound was completely healed. Because transplant recipients can’t have any open wounds, Patricia was removed from the transplant list. The couple estimates that they lost about a year of waiting due to the wound on the bottom of her foot. Patricia is now back on the transplant waiting list, with hopes of receiving a kidney transplant one day.
Thanks to the placental grafts, Patricia has a chance at life without dialysis and the opportunity to resume living life to her fullest. Patricia is incredibly thankful to the mothers who donated their placentas after giving birth, and Barry was deeply affected by her recovery.
“ You don’t know how much it meant to us. It felt like I lost half of my partner. Patricia was stuck in this house for almost a year, and the only time she was able to get out was when I would take her to the doctor. Now I’m finally getting her back. Without the donated placental grafts, Patricia’s wounds would never have healed. ”
Surfing the Tsunami
Imagine being CEO of a fashion company when a monster wave threatens your life. Naheima, both a proud mother of three children and an avid surfer, experienced just that. While catching waves in Sri Lanka, she had a terrible surfing accident. Naheima hit the ocean floor and was bruised badly from her neck to her knees. During her treatment, the doctors discovered a tumor growing in the back of her breast. Naheima was diagnosed with breast cancer on her daughter’s birthday. The devastating news hit her like a tsunami.
As part of her healing journey, Naheima received 5 months of chemotherapy. During her second round of treatments, she also received immunotherapy. In time, Naheima underwent a mastectomy. During the breast reconstruction procedure, her surgeon used donated human skin grafts. A common concern for women undergoing treatment is how natural they will look and feel afterwards. Naheima’s response was simple: “I couldn’t be happier with the results.”
Naheima has become more comfortable talking about her experience. She has reached out to her community and connected with others who had been through similar experiences. She realized the impact that donation had on her life and wrote to her donor family. “I definitely will be living my life more fully and will try to care for myself a little bit more.” Upon reflection, Naheima says “I think I’ve always been an extremely positive person and thought life was precious, but this definitely added a different layer of perspective. And to be honest, there is not a day that goes by where I don’t think about the gift that I was given. It sits on my heart. How could I not think about the person that gave their life, you know?” Naheima is grateful for the gift of life and looks forward to catching the perfect wave again soon.
Without Missing a Beat
At age 52, Sue was diagnosed with breast cancer, the third generation of her family to battle the disease. Her maternal grandmother died of the disease but her mother, now deceased, was a 25-year survivor. It was her mother’s experience as a breast cancer survivor that greatly affected Sue’s attitude towards her diagnosis.
“When it was my turn to face this disease, I was determined to not just beat it. I wanted my life back completely. Breast reconstruction was not offered to my Mom and her quality of life wasn’t the same after cancer,” Pilon said. “Given all the advances in breast cancer treatment and reconstruction options in the years since, I was certain there was a path available that would get rid of the cancer and yet allow me to get back to the way I looked and felt before the surgery.”
The University of Michigan Breast Cancer Center and Plastic Surgery Department provided the answer. Since Sue’s cancer was discovered very early, and her overall health was very good, she was a candidate for reconstructive surgery using dermal skin grafts. Her mastectomy and reconstruction all occurred on the same day and she left the hospital 24 hours later, cancer-free and not requiring any additional reconstruction.
“This is a tremendous gift I’ve been given. I am extremely aware and appreciative
of the fact that a family, at the worst possible time, was asked if they were willing
to make a gift of organs and tissue from their loved one, so that other people –
strangers – might have a great quality of life after breast cancer without missing
a beat. I thank my donor family in my heart every day,” said Pilon.
Having Faith to Reconstruct Life After Loss
Bobbie was embracing her graduate studies in psychology when she learned that she had breast cancer. “I didn’t sign up for this but here I am, among the group of millions of women plagued by this disease,” she remembers. She was single and spent a lifetime working and caring for children with special needs, especially those with diabetes like herself, helping them to cope with their condition. Her faith and training had taught her how to deal with these tough situations and Bobbie was ready to give this her best fight.
Three months after her diagnosis, Bobbie had a lumpectomy which was followed by double mastectomy after the cancer began spreading to her lymph nodes. In a single surgery, the cancer was removed and both breasts were reconstructed. Her recovery was swift and Bobbi was soon enjoying days of fun in the snow with reconstruction results that were better than she expected.
Following her surgery, Bobbie learned that donated skin was used with her breast reconstruction. “Someone died to help me heal again. What a gift!” remarked Bobbie as she was overcome by gratitude by the kindness of the donor family who made this possible. Bobbie later learned that even with a diagnosis of cancer and diabetes, you can donate corneas to give sight to others. Today, she honors her donor family by becoming a registered donor and lives each day in gratitude for the gift that has been given to her.
I have my life back
Tissue recipient Kenneth Williams (far left) suffered for nearly 20 years with debilitating back pain from an old weightlifting injury. The retired aircraft engineer battled degenerative disk disease in his back. “It was like someone had a chisel in my back and was constantly hitting it with a hammer,” said Kenneth, who lives in Southern California.
While Kenneth struggled with his disease, a family in North Carolina also struggled with the tragic loss of their beloved son. Jason Ray (above right) was the team mascot for the University of North Carolina’s basketball program who was struck and killed by a car while attending a New Jersey basketball tournament in March 2007. However, hope would come for both Kenneth and Jason’s family in the form of organ, eye and tissue donation.
Kenneth could only find relief through a surgical procedure on his back that required donated tissue—tissue that he received through Jason’s gift. "Jason's spirit lives on through people like me," stated the father of five and grandfather of six.
Now, simple tasks like driving, sitting or standing for more than 15 minutes at a time, traveling on an airplane, and taking walks on the beach with his wife are possible without pain for Kenneth. "I have my life back," said Kenneth. "My wife can tell you I became withdrawn due to my pain. Now she says I’m back to the way I used to be.”
Three transplants later he is biking and snowboarding
It was the beautiful scenic landscape and challenging terrain that drew Chris Mitchell to Utah’s invigorating outdoor activities. Extreme sports like snowboarding and mountain biking are the activities he loves doing the most. Unfortunately, along with the thrill of extreme sports, knee and shoulder injuries are common and Chris has had more than his share. But donated tissue has helped Chris come back from surgery for the repair of both his left ACL (anterior cruciate ligament) and his shoulder.
Two and a half months after his last surgery, Chris was back on his bike riding about 3,000 miles over the next year and snowboarding 83 days. Although he has tempered his level of activity to avoid additional injury, he is thrilled to be back enjoying the sports he loves.
“I’ve had three transplants which have allowed me to continue to participate and do the things I love doing. I registered to be a donor decades ago, but I never expected to benefit from donated tissue. My tissue transplant experience has brought this close to home, bringing everything full circle to me. It gave me a new lease on life; allowing me to participate in the sports and activities that I love. Receiving a tissue transplant is a much more intimate connection for me since this gift is implanted inside of me. I had a chance to write to my donor’s family, thanking them for their generous gift. I am forever grateful to the network that exists which allowed me to heal including donors & their families, the staff recovering the tissue, surgeons and hospital staff who cared for me.”
Driven to Overcome
In 2011, Joe Rothpearl suffered a catastrophic injury to the C6-C7 spinal segment in his neck. This spinal segment provides essential structural support and flexibility to the neck, and plays a vital role in protecting the spinal cord.
So, when doctors told Joe he would be a quadriplegic relying on a ventilator, he was left with an important decision to make—approving a fusion surgery. Joe gave his surgeon the thumbs up, and his injured disk was soon replaced with a donor bone.
Within 2 years, Joe had two more surgeries, one of those involving donor bone to another area of his cervical spine. After his third surgery, Joe began the road to recovery.
Although Joe's injury has led to his diagnosis with cervical spondylotic myelopathy, he looks forward to every day and his passion for Dodge Challengers to help fight the pain. He even developed a blog, Every Day Brings New Challengers, for the sole purpose of sharing unique photos of Challengers. This blog quickly turned into a website, ChallengeroftheDay.com, in order to share even more. But his passion doesn't stop there.
Joe has also developed an impressive collection of die cast Challengers over the years—a hobby he picked up as a kid.
"Throughout the years I had a lot of days where I needed a smile and Challengers always came through for me," he says. "Joy is all I ever feel when I open a new die cast or sit or drive in mine, or even just stare at any scale version."
He has developed a noteworthy following across Instagram, Facebook, and Twitter, and hopes his collection of photographs and videos bring a smile to those who may need it.
Furthermore, Joe's gratitude for his donor has inspired him to actively encourage others to become organ and tissue donors themselves. "You never know, who around you, is already a recipient", he notes. "And there is no greater gift a person can give in this world. It is the gift of a lifetime."
Grateful for Life's Second Chances
As an Assistant U.S. Attorney, Jim Noble is no stranger to the need for second chances. He has made a career of seeking justice while protecting the public, which sometimes means offering other people a second chance at life. Little did Jim realize that he himself would soon be on the receiving end of a second chance—through the gift of tissue donation.
Jim ruptured the ACL in his left knee while playing intramural soccer at Texas Tech University. In youthful exuberance, he was hesitant to have surgery at that time. He enjoyed basketball, tennis, and running 5K’s, 10K’s and half marathons. As time marched on, the effects of the injury began to take an even greater toll on his body. Casually skiing down a slope or simply stepping off a curb often came with excruciating pain. How would this outdoor enthusiast ever be able to return to the active, east Texas life he knew and loved?
After consulting an orthopedic specialist, Jim knew that surgery was his only hope. His surgeon suggested using donor tissue to optimize his chances of quickly healing. Jim diligently underwent physical therapy. After four months of rehabilitation, Jim was able to re-engage in light running. His is knee was once again stable, he was pain-free, and he was back to competing in sprint triathlons again!
Jim remains passionate about donation and transplantation. “You certainly become more grateful for donation when you benefit first hand. It improves your quality of life in a very tangible way,” shares Jim. In fact, Jim’s family has a rich heritage of donation. His father felt so strongly that he donated his body to UT Southwestern Medical School. Jim signed the state registry to become a donor as well. “I think it is important, while you are healthy, to make the donation decision, and not push that decision off to your survivors,” Jim reflects. He is grateful for the second chance at a vibrant life both as a middle-aged athlete and with his daughters.
Knowledge is Power
Lesley is a motivational speaker, life/business coach, and an optimistic fitness fanatic. As a mother of two young men, she found herself unprepared for the life-threatening storm brewing. “My mother died of pancreatic cancer,” Lesley recalls. “She also had the BRCA gene mutation.” Since offspring of carriers have a 50% chance of inheriting the mutation, Lesley was tested at the urging of her family. The results confirmed that Lesley was a carrier. She was now at increased risk of becoming part of the 1 in 8 U.S. women who will develop breast cancer in their lifetimes. Armed with this knowledge, what would she do?
As a precaution against ovarian cancer, Lesley immediately had her ovaries removed. Doing so lowered her risk of ovarian cancer from 40% to 0% and lowered her risk of breast cancer from 85% to 40%. Initially, she was adamant, however, that she would not have a double mastectomy. But she recalled her 23-year old son saying: “Mom, that’s still almost a 50% chance of getting the disease.” Lesley knew that at all costs, she had to avoid the risk of later having to look into her oldest son’s eyes having to tell him that she had gotten a cancer that could have been avoided with the mastectomy. Simultaneously, her sister decided to undergo the preventive procedure. She did this as a preventive measure despite a history of normal mammograms. After surgery, however, tests revealed precancerous cells in the removed breasts. Terrified, Leslie immediately called her own doctor and said: “We need to schedule the double mastectomy. I’m not going to go sit and wait for it [cancer] to get me!”
After a very difficult surgery, Lesley prepared to return to work a week later. She learned that the tissue graft used in her reconstructive surgery came from a donor. "I was so touched. I had never even heard about tissue donors. I was just kind of astounded and really touched that someone would go out of their way to be a donor and never even know its possibility". A tempest of emotions left Lesley sobbing, "With an 85% risk of developing breast cancer, I lived in fear of my future. Yes due to the generosity of a skin donor and preventative breast reconstructive surgery, I am now empowered by what the future holds," Lesley proudly exclaims.
Resilience: Surviving Breast Cancer
Denise is a musician with a passion for living a vibrant life. She loves writing music and also practices yoga—one of her favorite hobbies. To her dismay, Denise was diagnosed with breast cancer in 2017. The diagnosis was particularly jarring because only a year earlier, her mammogram test was negative. “I started experiencing pain under my armpit. I didn’t think much of it at first, but then the pain was persistent,” Denise recalls. The shocking news came as she was departing on a long-anticipated trip to Paris with her husband. Denise was urged to repeat her mammogram as soon as possible. The biopsy confirmed her worst fear—Denise had stage 2A breast cancer. Days later, she underwent a total bilateral, skin-saving mastectomy.
Denise made a slow but steady recovery. Six weeks after her surgery, she was even able to begin yoga again. Shortly after that, however, Denise experienced complications, so a second surgery was needed. Following surgery using donated human tissue, Denise recovered well from the surgery and is back to enjoying life.
Denise and her husband are passionate about organ and tissue donation and are both registered donors. “I really didn’t realize that you could donate something other than the major organs and corneas. That’s what you hear about in the media. Donated tissue helps so many people, like myself, with surgeries every single day." Denise and her husband look forward to one day touching other’s lives with the generous gift of donation.
In the saddle again
A retired schoolteacher, Barbara loves open spaces, mountains, and outdoor adventures. But spending time with her horses is her greatest passion. After two horseback injuries exacerbated her back pains, an MRI revealed that she needed back surgery. Her surgeon, a horseman himself, reassured her that she was going to ride horses again and suggested using donated human tissue for her surgery.
Six months later, Barbara was on her way to recovery. For the first time in her life, she finally experienced complete relief of back pain. With the help of her local equine therapeutic center and robust physical therapy, she is riding her horses again. “This tissue transplant has enabled me to live life to the fullest - everyday. I love being able to stride again and not walk with mincing steps for fear of pain. My motto is ‘just keep moving’. I am not only riding my horses again but I can now travel once more.”
Barbara has written to her donor family to thank them for being a part of her recovery. She is now a registered donor and is planning to donate her body to research so that medical knowledge about arthritis and other conditions can be advanced through her donation.
Judoka looks ahead to National Championship
Janna Levin is a Judoka – a practitioner of the Japanese martial art of judo. Judo is a dynamic sport that demands both physical prowess and great mental discipline, and Janna has found it to be a great outlet. As a mother, wife, and teacher, she carries the principles of the sport from the practice mats into her everyday life. In 2015, with her sights set on placing at the National Championships, Janna suffered a significant knee injury, a severed anterior cruciate ligament and damage to the meniscus. Cruciate ligament tears often have serious implications, sometimes resulting in permanent damage to the knee. To give her the best chance at a full recovery her surgeon strongly suggested surgery using human donated tissue to replace the severed tendon. While she waited to have surgery, Janna maintained her strength with intense physical therapy. Immediately following her last class of the semester, she had her surgery.
Recovery from ligament tears is a lengthy process, taking several months. Fifteen weeks post-surgery, Janna was able to run on a treadmill and is back in the classroom, managing many long hours on her feet. Janna is slowly getting back to judo, and she is determined to compete at the Judo National Championships once again. Her young sons can’t wait until she can tolerate falls again, so they can practice throwing her on the mat during judo class. And Janna looks forward to spending time with them doing something they all love to do.
Janna was unaware that she would be able to thank her donor family until a hospital staff member gave her information about how to write to them. Janna wrote to them following her recovery. "This tissue will allow me the opportunity to enjoy being active with my family, maintain the level of exercise I'm used to, and make a bid at the National Championship in Judo next spring. With this donation, you have given my life back to me." Although she has always been a supporter of donation, she is grateful to be a recipient of this gift.
A girl, her guitar, and a promise
For as long as she can remember, Carrie would wake up each day relocating her dislocated shoulder after a night’s sleep. A rare genetic disorder, Ehlers Danlos Syndrome (EDS), caused the ligaments and tendons in her body to stretch like taffy, resulting in joint dislocations, especially in her shoulder. Her physical injuries were so debilitating, it kept her from fulfilling her lifelong dream of becoming a nurse like her mother.
After multiple failed surgeries using her own tendons, Carrie was diagnosed with EDS and her physicians now understood the reasons for her graft failures. They decided to use donated tendon to repair her right shoulder. The surgery was successful but a few months later, her left shoulder failed and a second donated tendon enabled her left arm to be functional again.
“The surgeries not only gave me back the full use of my arms, it gave me freedom from that feeling of defeat by my disorder. I am going to get to do the things that give me life again – playing my guitar, fishing with my grandfather, hugging with both arms, walking my dog, driving my car, and above all gain my independence back’, said Carrie.
A few years ago, Carrie lost an uncle who was a tissue donor. In her letter to her donor’s family, Carrie shared her promise, “I promise to always look for ways to give back to others, just as you did by making that decision, whether I do that in my career, personal life, or elsewhere. Your ability to see the potential in your loved one during the time of difficulty is so inspiring that I promise to do that in my life as well. I will find the potential in others and do my best to help them overcome their battles just as your family helped me to overcome mine.”
You can view Carrie’s video story on our YouTube Channel.
Donor Gets a Dancer Back on Her Feet
An active young woman, Ivy Chang didn’t know much about tissue donation or allograft surgery – even though she works as a nurse, but that all changed after a skiing accident. The damage to her ACL was extensive, requiring that the tendon be replaced with a donor tendon. Although the surgery put her active lifestyle on hold, she is finally through with all her physical therapy, and feels fully recovered.
Ivy is back to her much loved dance classes, and is trying out jazz! She says this gift of donation has her excited about skiing again, hiking, dancing and caring for her young puppy. “I will be forever grateful for this gift your family gave me” wrote Ivy in a letter to her donor family. “During my recovery, I also signed up to be a donor so I can give others the same opportunity to receive this very special gift”
Grateful for the Gift
It was an ordinary Friday afternoon when Mary, an energetic teacher in Houston, was wrapping up her workday. She straightened her room, erased the whiteboards, and then checked her email. To her surprise, she saw a stunning message from her physician: "The results from your biopsy are back and we are 80% sure that it is cancer," it read. The news was devastating. "What does this mean?"... "Are you sure this is my diagnosis?" she wondered. She spent the weekend in turmoil, thinking about what she had just read but unable to ask questions about her condition. None of this made sense. Mary runs marathons and practices yoga. She's vegan and eats a gluten-free diet. "It couldn't be me," she thought. Mary had always been a picture of health. In fact, cancer had never visited her family tree. Her life had been consumed with teaching students by day and by night. After years of saving, she was finally able to buy a cozy vacation home in the French countryside. How could cancer be touching her life, her body, especially now?!
The news became more devastating. Mary had triple negative breast cancer--the most aggressive type of breast cancer-- affecting mostly young, pre-menopausal minority women. Traditional treatments for this type of breast cancer are not effective. After visiting with an oncologist, Mary immediately began chemotherapy and subsequently chose to have bilateral mastectomy to avoid the possibility of cancer affecting the other breast. A few months later, she scheduled breast reconstruction surgery and decided to use donated skin graft for the procedure. Mary had learned from a cousin that using donated skin grafts was an option to improve the outcome of reconstruction and she believes her surgical results are excellent.
Gratitude is a word that comes to mind often to Mary. She's grateful for her new perspective on life, family, friends, and her donor gift that enabled Mary to feel whole again. "I've always been a donor. I registered a long time ago but feel honored to be part of the receiving end of this cycle of giving. I've always been a giver, but this has awakened me to a whole new level of gratitude for the generosity of such a gift". Today Mary enjoys running again, spending vacations at her countryside him in France, and speaking to small groups about her cancer journey.
You can view Mary’s video story on our YouTube Channel.
Father Restores Active Lifestyle
As a tissue recipient, Sandeep Chiplonkar’s work at MTF Biologics hits very close to home. While playing basketball, he suffered an injury, resulting in a torn ACL. After 3 years of wearing a knee brace and not being able to return to an active lifestyle, Sandeep sought a second opinion and followed his surgeon’s recommendations to have ACL reconstruction surgery using a donated tendon.
A decade after his surgery, Sandeep’s knee remains fully functional and he no longer wears a brace. Now a father, he spends countless hours with his active son, enjoying the parks and other fearless physical activities.
Sandeep believes in paying it forward and is a registered donor. A member of the Asian Indian community, Sandeep is a fervent advocate for donation, and like many who share the Hindu faith, he believes in the concept of Karma, duty and selfless giving. Today, he loves sharing his story to audiences and teaching others about the importance of signing up to be a donor.
Climb of a Lifetime
For Sterlynn, a 30-year-old who loves hiking and other outdoor activities, moving to Colorado was a dream come true. This was the perfect place to combine her work as a philanthropic event planner with her love of outdoor activities like camping, tennis, and running. Unfortunately, five months after she moved, she received a devastating diagnosis. She had breast cancer. Although both her mother and grandmother had been struck with the disease, the diagnosis was still shocking for a vibrant young woman like Sterlynn.
Hundreds of miles from her friends and family on the east coast, Sterlynn found herself facing the biggest uphill battle of her life. Nevertheless, she courageously forged on. Completing 6 rounds of chemo, Sterlynn chose to have both breasts removed. In a single surgery, the cancer was taken out and each breast was successfully reconstructed using donated dermal tissue. As difficult as it was to deal with the loss of her native breasts and adjust to the new ones, Sterlynn was thrilled with the results of her breast reconstruction.
When Sterlynn learned that donated skin was used in her surgery, this tugged at her heartstrings. “My work with philanthropy relies on the generosity of people to give so that others can get the help they need. Now, I am experiencing generosity of a different kind—generosity in a deep and personal way,” remarked Sterlynn. As one of over 3 million breast cancer survivors in the United States, Sterlynn feels blessed to have received the precious gift of life. Through tissue donation, she proudly reclaimed her life with a renewed sense of vigor and is now enjoying life in the midwest with her husband and daughter.
Learning to Live Her Best Life
Kelly is an instructional specialist that loves being in the classroom and making a difference in the lives of children. Happily married with a four-year-old daughter, she enjoys reading, outdoor sports, and spending time with her friends. About once a month, Kelly meets up with friends she met when she started teaching 15 years ago. During those times, she enjoys catching up over coffee and sharing play dates with the other mothers. Over time, however, she began to sense that something was wrong.
Kelly felt a small pea-sized lump in her upper left breast. Knowing that breast cancer ran in her family, her husband encouraged her to get it checked out. Her doctor suggested she get a mammogram, which was soon followed up with an ultrasound and a biopsy. A few days later, on a Friday afternoon, she got a call from her radiologist. Her test results were not good, but another radiologist would review the results with her on Monday. After an agonizing weekend of waiting anxiously, Kelly learned that she had a very aggressive form of cancer called triple negative breast cancer. Further testing also revealed that she had the BRCA gene.
Armed with that knowledge, Kelly decided to undergo a bilateral mastectomy. During her breast reconstruction procedure, donor tissue was used. Kelly was already a registered organ donor, and her experience with donation only strengthened her feelings. “It was really difficult to think about what that family had to go through, but knowing that it really helped you,” Kelly says. “It’s a selfless act that takes a lot of courage to step up and do.”
“The tissue transplant has allowed me the opportunity to heal psychologically and emotionally. I am able to feel whole as a woman and heal through this journey. The confidence due to my reconstructed breasts will ensure that I am able to watch my daughter grow up and make a lifetime of memories with her and my husband.”
Now, Kelly jumps at the opportunity to live her life to the fullest. Just this year, she and her close friends made a point to go on vacation together. “While I was working and being a mom to a young child, I had put a lot of things on the backburner. Even simple things like going to a concert or going out and doing different things that I used to do all the time. Now I jump to say yes to things I want to do instead of making excuses for why I can’t.”
Taking Time to Smell the Roses
Sandy McManus is a dedicated healthcare worker. When she isn’t serving the needs of others, she enjoys playing with her dogs and seeing the beauty of the surrounding nature. There is, however, a notable complication. She has suffered with chronic sinus infections her entire life, which had virtually eliminated her sense of smell. At 26 years old, Sandy’s septum was deviated. She underwent plastic surgery to fix the problem. Years later, Sandy was ejected through the windshield during a car accident. After a series of plastic surgeries, her nose unfortunately fell again. By then, Sandy had grown weary from the painful surgeries and their side effects.
Thankfully, Sandy found a surgeon in Dallas that was able to end the longstanding saga with her nose. Using donated costal cartilage tissue, the surgeon reconstructed Sandy’s nose. A week later, Sandy could freely breathe through her nose again. For the first time in decades, she also enjoyed a normal sense of smell. “My nose is perfect now,” Sandy exclaimed. With self-confidence restored, she can now enjoy a rejuvenating night’s sleep and no longer suffers from sinus infections. Best of all, Sandy can take time to smell the roses once again. She spends her weekends volunteering to help with the emotional and physical needs of children and adults through horse equine therapy. Sandy had also never considered being a donor before. Now Sandy gleefully exclaims, “The surgery made me so happy that I want to become a donor and bring joy to someone else.”
Skin donation makes difference for burn victim
On June 24, 2006, 16 year-old Richard Pawling and his sister were riding their dirt bikes when they suddenly collided. “I don’t even remember what happened. All I know is that somehow we crashed and my gas tank exploded,” said Richard.
Both Richard and his sister were burned, however, Richard’s injuries were more serious. Richard had third degree burns over approximately 65% of his body. He was in the hospital for 95 days, and required 26 different surgeries. He also required skin grafts to heal. “Very early in my healing process I received donated skin. My doctor told me what it was and where it came from. I’m very grateful for it.”
Today, Richard is married with two children. He has completed college and has his own taxidermy business. “I’ve learned from this ordeal. Donation is a very good thing and tissue is very much needed for patients like me.”
I Can Finally Walk Again
Riding horses was Karen’s delight. It gave her a chance to be outdoors and enjoy nature. But when a horseback riding accident left her with an injured knee and the need to use crutches to get around, she was determined to fight back.
“The accident not only hurt my knee but my confidence in what I could now do.” Complicating her recovery was the fact that Karen also had Multiple Sclerosis (MS), a progressive disease which can impact mobility, especially walking.
Treatments for her knee were limited due to MS. Without surgery she would be wheelchair bound. Her surgeon informed her that she would need a graft from human donated tissue since her own tendon could not be used. Several months after surgery, Karen was back at work running her own company and participating in life again.
“While I can no longer ride my horses anymore, I am so grateful for the very simple things in life like getting out of bed and spending time with my family. Although MS has made this a bit more challenging, I can finally walk again,” Karen said. “This tissue transplant has allowed me to put my knee back together and thus, my life. Without it, I would not have walked. I will always be grateful for the donor’s family decision which is changing my life in so many ways.”
Back in the Great Outdoors
Julie Dey promised her family a life filled with great outdoor adventures when they relocated to Utah. Little did she know that one of those adventures would result in her own life-changing experience. On Memorial Day weekend in 2013, she crashed while riding her daughter’s dirt bike. The top of her tibia was crushed. Repairing it required a talented surgeon, a titanium plate, seven pins and donated human tissue.
“I was in pretty bad shape and the extent of my injuries was far greater than what we imagined.” Extensive physical therapy helped her learn how to walk again. Six months after her surgery, the donated bone implanted in her tibia had produced enough bone growth that her surgeon was able to complete additional surgery needed to repair her knee.
During her hospital stay, Julie received a packet from the hospital staff that provided information on writing to her donor family. “Not a day goes by that I am not filled with gratitude for this generous gift,” she wrote. “The donated tissue has really blessed my life. It has allowed me to walk again. What a miracle.”
Back on her feet
Hunter Johnston was an active high school senior when a serious car accident dramatically changed her life. This vibrant eighteen year old suffered a head injury, a contused lung, bilateral hip dislocation and multiple fractures to her face, fingers, pelvis, sacrum, and ankles. Many surgeries later, she was found herself wheelchair bound facing intense physical therapy. Physical therapy got her back on her feet but only with crutches as her left leg could really not handle any weight bearing activity.
Five months later, Hunter underwent another surgical procedure to her left hip that determined she needed to have the head of her femur replaced. The only replacement option for her damaged femur was an osteochondral allograft. An osteochondral allograft is used in a grafting technique indicated in patients with articular cartilage damage to help restore the normal functioning of the joint. After waiting for about three months, Hunter received the call she had been anxiously anticipating...a donor graft had been found. According to her surgeon, the “graft fit like a glove."
Only six weeks following her surgery, Hunter was walking again! Today, Hunter is working full-time at a job that requires her to stand on her feet for over eight hours per day. “Since the accident, I have changed to become a donor for both organs and tissue because without people to provide the donations, I wouldn’t be where I am today," she said.
The Gift of Donation Turns Personal
Regina Harris had spent her career working as a nurse and helping to set up healthcare facilities at US Military installations around the globe. Among her many roles, an area of great pride was training staff on the importance of organ and tissue donation, and offering families whose loved ones would not survive about their options for donation.
Little did she envision that she would be on the receiving end of those difficult conversations, as a recipient of donated skin.
As retirement loomed on the horizon, Regina and her husband made the choice to settle in Arizona on the outskirts of Phoenix.
Just as they were settling into their new life in the desert, Regina went in for a routine mammogram, and was asked to return for an MRI due to some suspicious looking tissue in her breast. As a healthcare provider, she asked to look at her own films, and was horrified at what she saw. The suspicious shadows looked like a large piece of gauze were thinly folded inside the layers of breast tissue. Biopsy results were positive. Less than a month later, she underwent a double mastectomy.
Regina feels very fortunate to have the option of having her post mastectomy breast reconstruction at the same time as the mastectomy. Donated skin helped her heal, and be able to resume her work within 8 weeks of her surgery.
“I’m proud of the role I played in organ and tissue donation during my career, and I am so grateful for the tissue donation” said Regina, “I really look forward to the opportunity to give back by sharing my story, hopefully inspiring others to appreciate the value of donation”.
Bouncing Back: Beating Bone Disease!
Imagine being an active female athlete with a love for competitive sports. You passionately play lacrosse, touch rugby, and field hockey. Your life, your friends, and your world centered on sports, but that has ended because you now live in immense pain. That is the situation Lara Marinich found herself in. The high school junior was diagnosed with Osteochondritis Dissecans (OCD), a debilitating condition that can cause bones to deteriorate and die from insufficient blood flow.
After three years of pain, Lara underwent surgery to restore circulation to her knee. Disappointingly, the pain and the OCD persisted. Lara began to lose hope. “I was in a dark place,” she recalled. In desperation, she underwent a second series of procedures. Her new surgeon replaced the dead bone with donated bone and repaired her damaged cartilage. Physical therapy was a grueling, 5-month ordeal. Lara wore a full-leg brace initially and a partial brace for another 2 months. Finally, she was on the road to recovery.
Because of donated tissue, Lara is looking forward to vibrantly getting back into the game of life. “I had no idea that tissue donation would impact my life,” Lara reminisced. “I can’t fully express how thankful I am for the surgery and the good things it will bring,” Lara wrote to her donor family. Although sad that her donor family lost a loved one, she is glad that their compassionate gift continues to give back to the world through her. “I will forever memorialize my donor,” Lara resiliently proclaims.
A Survivor
A positive outlook on life and work in health care has prepared Debbie for many setbacks she has experienced. As a second time survivor of breast cancer, she did not hesitate to move forward when told about options for breast reconstruction using donated dermal tissue following her mastectomy.
Pleased with her outcome following surgery, Debbie is grateful for the gift that has allowed her to feel secure, special and alive again. She is a survivor. Debbie continues her journey by journaling about her experiences, gardening, and spending quality time with her grandchildren.
“You and your family member will remain in my thoughts with appreciation, generosity, and kindness,” wrote Debbie in a note to her donor family.
I Will Survive
Laurie was only forty when she was first diagnosed with breast cancer. Her journey mirrored her mother’s, having also been diagnosed at a young age. After learning that Laurie’s mother was diagnosed with breast cancer a 2nd time, Laurie’s friends urged her to schedule a follow-up mammogram. Although it had been 10 years since she had first been diagnosed with and treated for cancer, as soon as Laurie saw her radiographic image, she knew the news would not be good. This time, the type of cancer was different. It was more invasive and would require a mastectomy. Fearing the recurrence of a 3rd round of cancer in the other breast, a 50% risk according to her oncologist, Laurie opted for a bilateral mastectomy. “As a wife and mother of four active boys, I need to be here for my family. I needed to survive,” she said.
Deciding to undergo the mastectomy was the easy part for Laurie. She was not, however, prepared for the emotions that would follow. Laurie’s considering a bilateral mastectomy raised questions like: “What will I look like? Will I still feel feminine? Would a mastectomy be noticeable in clothing?” These were some of the many questions that flooded Laurie’s mind. Her plastic surgeon immediately put Laurie at ease with the reassurance that after a single surgery, she will not only have the cancer removed but will also have new breasts in place that will give her the confidence to feel as feminine as she always has. A couple of weeks after her surgery, Laurie was self-assured once again. She was pleased with both her outcome and her decision.
Laurie was pleased to learn that donated skin grafts used with her breast reconstruction surgery. As a healthcare professional, Laurie was elated to find that donated tissue could be used to help so many people in so many ways. She later discovered that her donor was a woman - possibly a mother, daughter, aunt, or sister. She was so moved by the generosity of her donor’s gift, that she was compelled to express her gratitude to her donor’s family. “Thank you for giving me such an amazing gift. You have given me back to my family. You have made it possible for me to live out my life. I want to honor your loved one’s memory with strength and grace.”
Donated Tissue Helps Mother Continue Fight
At 43 years young, Tracey Warren-Hein was a busy, active mother of 2 young boys. Her days were filled with her family, and enjoying an active outdoor life, which included pleasure and competitive horseback riding. Always conscience of her health, Tracey had a routine mammogram in May of 2017, and the results were negative for any kind of growth or lump, however in August she felt something. And she knew it just wasn’t right.
Tracey had Stage 3 Triple negative breast cancer. By September she underwent a mastectomy, followed by chemotherapy and radiation. Tracey did her best to keep all their family routines the same, focusing on her life, rather than her illness. In June, 2018 after chemotherapy and radiation were finished, she underwent breast reconstruction surgery. It wasn’t until after the surgery that she learned that her surgeon used donor skin with her procedure.
“I had no idea skin was even something people could donate” she said.
Full of gratitude, Tracey wrote to her donor family, and included these words “The donated tissue has allowed me to heal enough to continue my cancer battle,” she wrote “I have two beautiful smart sons who mean the world to me. I am determined to beat cancer. Your family member will remain in my thoughts for their kindness and generosity”
Back in Full Swing
In 2015, high school football tackle Evan suffered a season-ending broken collarbone.
Collar bone breaks often fuse back together without surgical intervention. Unfortunately, Evan’s injury required surgery with a plate, six screws, and donated bone grafts (DBX Putty) to heal properly. Six months after his surgery, Evan was literally back in full swing. He earned a spot on the varsity baseball team as pitcher and had a great season. Evan’s pitching arm is as strong and fast as ever and his golf swing is better than ever.
Looking ahead to college and hoping for a career in sports management, Evan takes with him his story of donation. Evan is an active donation ambassador for MTF and the local organ recovery program in his home state. His story touches the lives of people who are not aware of the success of bone donation after death. He inspires individuals to say “yes” to donation.
Evan sent a letter of gratitude to his donor family, thanking them for helping to restore him to health and mobility. Not a day goes by that Evan and his family say a silent thanks to their donor’s family. Evan’s Mom notes, “We are so thankful that Evan was able to have the tissue donation so that he could be a fully functioning 17-year-old boy and get back to the activities he loves, including sports, hanging out with his friends and volunteering at our church food pantry”.
A life-changing donation inspires to change lives
Angela was born with a condition that remained undiagnosed most of her life. In childhood she began having seizures. As a teen she suffered severe headaches. Her symptoms worsened to include vision problems, short-term memory loss, and tingling in her extremities.
In 2013 Angela was diagnosed with Chiari Malformation. This rare congenital condition forces the brain downward into the spinal canal. Without surgery her plight would continue to worsen and possibly end in death.
Angela’s doctor performed brain surgery using skin and pericardium grafts to relieve the pressure causing her debilitating symptoms. “I am humbled. I know that somewhere out there, there is a grieving family who looked past their loss and made the selfless decision to allow donation to occur,” Angela recalls. She is grateful for her successful surgery and the generosity of the donor families that made it possible.
In 2021, Angela was presented with the opportunity to donate her birth tissue following the delivery of her firstborn. “As a recipient of skin and pericardium grafts, I know how impactful tissue donation can be. When I learned that I could donate my placenta during my pregnancy, I knew that I wanted to do so - I wanted to give back! It is so special to know that others can live fuller, healthier lives from this new life that came into our lives!” remarked Angela.
Today Angela is a donor development coordinator who spends time supporting hospitals with donation services. She additionally enjoys an active life of running, hiking, and raising community support through the Chiari and Syringomelia Foundation.
Donor Tissue Rescues Runner After Australian Wildfire
Turia Pitt, a fitness enthusiast, mining engineer and model, was caught in a freak firestorm while competing in a 100 km ultra-marathon in Western Australia in 2011. The 24-year-old was helicoptered out of the remote desert, barely alive, with horrific burns to 64 percent of her body. Unable to find the donated skin needed to save her life in Australia, her doctors turned to the United States. MTF Biologics provided Turia with the life-saving gift of skin.
Post skin grafting and extensive physical therapy, Turia continues to compete in triathlon and iron-man events. She’s a bestselling author, a motivational speaker and mentors thousands of individuals world-wide through her online goal setting programs.
“I want to thank Americans for their generosity, especially the donors and their families who said yes to donation and saved my life”, Turia said. “I would not be here today without their decision to give the gift of life. To these special people I say Thank You and Bless You, I carry your generosity in my heart as I do what I love – train, run and enlighten others to achieve their personal best.”
In 2016, Turia Pitt and her fiancé, Michael, traveled to the U.S. to thank her donor families for her life-saving gift. During her time in the U.S., she visited MTF Biologics and met with staff members who were a part of the process of making this happen.
Turia is now a mother of two young boys and continues to spread hope to others.
Saluting Our Soldiers
Sgt. First Class Joseph Fontenot is a proud soldier in the 101st Air Assault division of the U.S. Army. This Louisiana native has served in both Iraq and Afghanistan, has lost friends in combat, and was named “Military Times Soldier of the Year” in 2015. Little did this husband and father know the battle he would soon be fighting to recover from a career-threatening injury. With adrenaline pumping during an intense training exercise, Fontenot did not realize the extent of the injuries sustained while exiting a Blackhawk helicopter. Despite rupturing his ACL, MCL, and meniscus during this pre-deployment military exercise, Fontenot did what he was trained to do—soldier on.
As the day progressed, Fontenot’s knee continued to swell. Due to the complexity of his surgical needs, Fontenot was sent to Keller Army Community Hospital at the United States Military Academy at West Point. Using donated tissue, he completed a series of three different, specialized surgeries on his right knee. After 18 months of surgeries, five months on crutches, and extensive physical therapy, Fontenot fiercely recovered.
“I can honestly say that without having this tissue transplant, my military career would be over,” Fontenot recounts; “It’s given me a new lease on life.” He once again enjoys canoeing, kayaking, and being part of a team of soldiers defending freedom at home and abroad. MTF Biologics proudly salutes Sgt. First Class Joseph Fontenot, his wife—a fellow veteran, and the other men and women that protect and serve our nation. MTF Biologics further honors the many donors and donor families committed to sharing the gift of life that makes essential partnerships with military installations and Veterans Administration hospitals possible, bringing innovations in tissue transplantation to our nation's veterans.
The Gift That Saved My Life
Sandy has been married to her high school sweetheart since 2001. A mother of two, Sandy was the first person in her family to diagnosed with cancer. While on vacation with her family, she felt a tug in her right breast during a morning run. Immediately, she knew something wasn’t right, but was not able to get an appointment for several months.
When she was finally able to see someone, both her primary physician and her OB/GYN decided it would be in her best interest to get a mammogram and exploratory ultrasound. The ultrasound led to a biopsy, and the biopsy revealed that Sandy had Stage II invasive ductal carcinoma. She knew that she wanted a double mastectomy. “I couldn’t live with knowing that I was going to do one side and the other side is like a loaded, ticking time bomb. I just couldn’t.” Following her bilateral mastectomy, Sandy underwent chemo and radiation, treatments that would ensure that she was technically cancer free.
Sandy remembers the day she learned that donor tissue helped give her the life she has today. “My husband who thinks he knows me better than I know myself, kept the information until he thought I was ready. He gave me my documents about my skin grafts, and I learned that it came from somebody who lost their life. I was given this gift, and I’m absolutely overwhelmed in both sadness for the family who lost a loved one, and in gratitude that I was given a second chance.” Today Sandy is learning to enjoy life at a slower pace and taking time to reflect - something her journey has taught her. She later wrote to her donors’ families to thank them for their gifts. “If you were ever on the fence about being a donor, I hope my story proves how important it is. It can truly change someone and save their life.”
A True Survivor
Joni was no stranger to breast cancer. Her mother was diagnosed with breast cancer in 1984 and went through a series of treatments and reconstructions. In 2013, Joni was diagnosed herself. Among her closest friends, Joni is described as the most caring person with a big heart. When Joni was diagnosed with breast reconstruction, she was ready to fight. Joni’s number one concern during her breast cancer treatment was always her children, her parents, her family and friends. One of her closest friends, Chris, describes a time that she visited Joni and, despite looking tired and in terrible pain, “Joni would not stop smiling. She always put on a happy face for everyone around her. Joni fought this terrible disease with dignity and grace. My friend Joni would have chemotherapy on a Friday and wake up at 6am on Saturday morning to take her children to their soccer games. She always found the positive, even in her cancer.” Joni elected to have breast reconstruction after her bilateral mastectomy with implants and donated dermis. She was so proud of her breasts that were ‘bigger and perkier’ than before cancer. “Joni is not only a mother, survivor and a fierce woman, but she is my hero,” says Chris. Today, Joni enjoys her full life with her family including her four beautiful children who are thankful to have their mom with them – a true survivor.
Living My Best Life!
Adrienne Brown is a wife, proud mother of a son and daughter, and a seasoned IT professional. In her spare time, she enjoys playing tennis, has always been a runner, and has recently picked up biking. Because cancer runs in her family on both her mother’s and father’s sides, she has regularly received mammograms since her mid-thirties. On Tax Day in 2019, however, she received shocking news. Despite her diligence, her breast cancer had gone undiagnosed.
During a routine visit, her OB/GYN did an examination by hand. “I just don’t like what I feel,” the doctor said. Following a mammogram, an MRI, and a biopsy, Adrienne found out she had three tumors. Fortunately, her husband was there when she received the devastating diagnosis. “It’s kind of a shock to the system. You think you can prepare for this type of thing, but you can’t—especially when it hits so close to home,” Adrienne reflects. “We now had to tell the kids,” she continued.
Being a native New Yorker, Adrienne refused to simply give up the fight. She first underwent six rounds of chemotherapy to attack the largest tumor. The next step in the procedure was a mastectomy. After speaking with someone who had been through the experience, she selected the option to have both the mastectomy and breast reconstruction in a single procedure. The surgery using donated skin grafts ended successfully.
“I would like to express my gratitude to my donor’s family. The best way to do that is to live my best life,” Adrienne proudly proclaimed. “Breast cancer warriors need to know they can still look great after a mastectomy! I didn’t know that,” commented Adrienne. “Now, I’m interested in becoming a donor too,” she concluded.
The Treasured Gift of Tissue Donation
Dr. Schwartz is passionate about using his gift of holistic medicine to bring healing to his patients. As an avid sportsman, he enjoys rejuvenating through an intense game of tennis. Imagine his dismay as his knee buckled when he darted toward the ball. The pain was excruciating and his ability to walk and hike was significantly compromised.
Over time, his knee began to deteriorate due to his torn ligament. “I knew I needed surgery to regain stability in my knee,” he recalled. Thanks to receiving human donated tissue, Dr. Schwartz successfully walked a full mile only three days after his surgery.
In gratitude, Dr. Schwartz wrote a Valentine’s Day letter to his donor family to thank them for their most precious gift. “I may be one of many who benefited from the treasures granted after your loss,” he exclaimed. “I am so grateful for tissue donation and will think of your loved one as I continue my recovery,” he wrote. He hopes donor families know the powerful impact their sacrifices make on lives like his.
Paying it Forward
Nicole Walsh is a wife, mother, and an athlete. She’s been playing volleyball since she was twelve years old, and she loves going for runs. One snowy day, as she darted back and forth on the volleyball court, a poor landing led to a torn ACL and meniscus—ligaments critical to stabilizing her knee.
A few complications delayed Nicole’s surgery for almost two months. During that time, with the help of family and friends, she managed to care for her three children while building the strength she needed for her recovery ahead. Finally, Nicole was able to have the surgery and could not be happier with the outcome using donated tendons. “If I hadn’t gotten this done, I would have never been able to get back to the life that I have today!”
Nicole is mindful of the compassion of tissue donor families and their gift that enabled her to serve again both on the volleyball court and in life. Once she was back on her feet again, Nicole wanted to pay forward for the gift she was given. After writing a letter of gratitude to her donor’s family, she signed up for the Gift of Life Donor Dash, joining thousands of donors, recipients and supporters in a walk that helps raise awareness for the cause that gave her renewed life.Finding a New Voice
Spending decades in medical sales did not prepare Don Snyder for his role as a patient. This father of two spends his professional life supporting physicians who care for ophthalmology patients during critical procedures. “I’m used to being on the other end, not the patient.” What started out as a toothache led to one of the most frightening moments of his life.
In 2019, Don began to experience pain in the back of my mouth and learned that he had an infection in his wisdom tooth. Further x-rays showed his wisdom tooth buried at the bottom of his jaw, just below the cyst that was causing him so much pain. After consulting with friends, Don found an oral surgeon that had experience with complex oral surgeries which would require cutting through his neck to grind out the tooth. “I knew this was going to be a difficult surgery to get the tooth out. The wisdom tooth was in an area surrounded by critical nerves and blood vessels. I was really scared,” recalled Don.
The surgery was a difficult one. “My surgeon was surprised that my jaw had not broken,” exclaimed Don. Over the years, the cyst had grown and eaten into his bone. Donor bone and two plates were used to stabilize and fill the gap taken by the wisdom tooth and cyst. Following surgery, Don continued to heal and he credits his medical care and donor for that. “The donated bone really helped with the healing process.”
In reflecting on the whole experience with his wife, “Someone else is part of my mouth now. Imagine that!” Her reply was, “I hope they also gave you a better voice.” He couldn’t agree more.
As a registered donor and tissue recipient, Don plans to use his voice will encourage others to join millions of Americans in signing up to become donors.Regaining a Limitless Life
Jessica Rogers, a New York publisher and outdoor enthusiast, lives an active lifestyle with her two wonderful children. Together, they hike, bike, and enjoy the many thrilling experiences nature has to offer. “I can’t sit still,” Jessica explains, “So, blowing out my knee was devastating.” Unfortunately, this wasn’t the first time Jessica had injured her knee. Almost thirty years ago, she severely injured her other knee. The recovery process was long and horrific.
Jessica chose physical therapy instead of surgery because she wanted to avoid the grueling healing process she experienced before. At first, her life returned to normal. Eventually, Jessica’s knee gave out again while she was playing with her children. The pain was so severe that she would cry herself to sleep at night. Surgery was unavoidable.
Six weeks after her surgery using donated tissue, Jessica was back on her feet. She had finally regained the strength in her knee and was able to get her life back. If Jessica could tell her donor family anything, it would be this: “The gift you have given is not one that I take lightly. I couldn’t be more grateful for getting my limitless life back,” Jessica reminisces. “Having a piece of someone’s loved one in my body motivates me. I push myself harder than ever. I’m living not just for myself but for them too. I want to make my donor proud!”
Overcoming an Eleven-Year Saga
Emily Biancamano’s life changed drastically after she was injured in a car accident in her twenties. She got married and had a son, but the pain continued returning. Emily tried everything from acupuncture to injections, but the pain in her hip kept worsening. For eleven years, she bounced around from doctor to doctor seeking relief. She endured several surgeries to remove scar tissue and repair the torn labrum in her hip. This health-conscious wife and mother was trapped in a debilitating cycle of chronic pain.
Emily’s painful journey finally came to an end when an orthopedic surgeon noticed bony impingements were repeatedly tearing the labrum cartilage that lines the hip joint. The surgeon used donor tendon to reconstruct Emily’s labrum. Within days, Emily was miraculously recovering. Already, she could tell that her chronic hip pain was over.
Donor tissue gave her the ability to do things that she hadn’t been able to do since she was back in high school. “Even though it seems like it’s so simple, this tiny piece of tendon I received changed my life. I can go on walks, ride bikes, and even chase my kid through the yard,” said she exclaimed. Emily is thankful for the gracious donor gift she received. She is also grateful that she has overcome an excruciating cycle of pain and now enjoys life more fully.
Finding Her Voice
For Sue, the topic of tissue donation was a labor of love. She spent most of her adult life advocating for tissue, organ and blood donation. One of the greatest benefits of her work was hearing the many heartfelt stories of hope and healing made possible through transplantation. She never imagined that one day, she too would have a personal story of her own to tell.
Six years ago, Sue’s life was turned upside down. She was juggling life as a busy mother of four, working full time, and caring for her elderly mother. Just when life seemed busiest, she heard those chilling words: “You have breast cancer.” Sue’s world came to a screeching halt. She recalls thinking, “I need to protect my kids and not have them worry about me. I want my husband to know that everything is going to be okay, and I needed to shield my mom from what I was going through.” In reality, Sue was even unsure how all of this would end.
Following her surgical consultation, a bilateral mastectomy was her only option. When she heard her physician ask, “What size would you like to be?” Sue realized she did have choices and sensed that everything would be okay. Sue’s plastic surgeon told her that donated dermal tissue would be used for her reconstruction surgery. “I was overcome by gratitude and humbled when I realized I was going to be a tissue recipient,” exclaimed Sue.
Two months after her breast reconstruction surgery, Sue was asked to speak about her experience. “I didn’t hesitate, even though I had never done public speaking before,” Sue said. “I was so humbled by the generosity passed on to me by my donor families, I was willing to go out of my comfort zone and make the gifts count even more. My donors’ gifts gave me strength.” Sue had found her own voice and now has her own story. Through the precious gift of life, Sue has reclaimed precious time with her family and is on a personal mission to educate others about donation and transplantation.
Not Taking Any Chances!
Although Kristina has never had breast cancer herself, those two words have greatly affected her life. It’s the reason that she never had a grandmother to visit and the reason why her mother cried at age 38 after finding a lump in her breast. Kristina remembers spending Easter weekend looking at her mother through a glass wall because she was too immunocompromised from a bone marrow transplant to be with her family. Thankfully, her mother beat the disease and has been cancer-free for 30 years.
When genetic testing became available, Kristina and her sisters knew that they needed to get tested. She was guilt-ridden when the only test that came back negative was hers. One by one, her sisters went through double mastectomies and breast reconstructions. Despite being negative for the gene, Kristina felt uneasy. After she had her fourth child, Kristina decided to listen to her gut. She was not going to take any chances with the disease that had caused so much turmoil in her life. She wanted a double mastectomy.
Kristina had her mastectomy in May of 2017. She was relieved that she was cutting down her chances of getting breast cancer by almost one hundred percent. Kristina allowed MTF to video her procedure. It was at that time that she learned that donor tissue would be used with her procedure. “I feel so honored that they wanted to film my procedure. I hope the video and my story will allow donor families to witness how the gift of tissue donation is used to help women who are faced with making a decision to have a mastectomy and breast reconstruction. There are really no words for the generosity of my donor’s family. Thank you for such an amazing gift."
Taking The Leap
Jennifer McGinnis is an industrial-organizational psychologist who loves physical activity, getting together with friends, and spending time with her family and rescue dog. However, she was very concerned about her cancer risk. After battling breast cancer for ten years, her aunt passed away, followed by two friends who lost their lives from breast and ovarian cancer. Jennifer consulted her gynecologist, who recommended genetic testing to see if she was at high risk of developing breast cancer.
After Jennifer tested positive for the BRCA1 gene, she had a tough decision to make. “I’m data-minded and believe in science, but choosing to have a life-altering surgery is difficult. It’s like jumping out of an airplane. Getting yourself over that hump to make a decision is the hardest thing.” Three years later, Jennifer took the leap and had a risk-reducing double mastectomy and oophorectomy to reduce her cancer risk.
Jennifer opted for breast reconstruction with implants. Although Jennifer knew that tissue would be used to create the pocket for her breast implants, she didn’t realize they were made from donated skin grafts —until she received information in the mail. Now, she volunteers with an organization that educates individuals about genetic testing and high-risk cancer. She loves empowering others to make informed decisions as they embark on difficult new journeys.
Jennifer is incredibly grateful to her donor family and wrote to them, expressing her gratitude for their gift, which has helped her feel whole again. “They offered a gift that, as a 40-year-old woman, enhanced my life and allowed me to have the longest, healthiest, most fulfilling life possible. And I don’t take that for granted,” she reminisced.
Breast reconstruction with donated skin grafts
Brianna Sawyer, her husband, and two young boys had just purchased a large piece of land in Idaho and were enjoying an active, busy outdoor lifestyle. When the pandemic hit, the young family felt fortunate to be able to thrive on outdoor activities. Brianna made another lifestyle change and lost 90 lbs when she felt a lump in her breast.
At only 31, it was hard to believe that the diagnosis was indeed breast cancer. Brianna’s young boys were told that ‘Mommy had a sickness,’ and they jumped in to help with her care. They helped cut her pigtails and even chose her wig. After undergoing six rounds of chemotherapy, the next step was a double mastectomy. Brianna’s surgeon elected to use donated skin grafts with her breast reconstruction surgery.
Only five days after her mastectomy, Brianna was hunting Easter eggs with her boys, and her recovery included camping, boating, riding dirtbikes, and jumping on the trampoline with her kids, and once again enjoying an active lifestyle.
Brianna wrote to her donor family to express her gratitude, “I will get more years of adventures with my family. Thanks to the selflessness of your loved one. One can never fully repay for a second chance at life, but I am going to give it my absolute best shot!”
Brianna is cancer-free, and although she will have to continue diligent scans and follow up, she is confident, joyful, and full of hope for the future.
Blake Altorfer's Story
During her pregnancy with her second child, Rachel and her husband received the news that baby Blake would be born with a cleft lip and palate. A cleft palate is a condition where the cleft doesn’t fully close prior to birth, and is open on the roof of the mouth. A cleft lip occurs when the lip doesn’t completely form, and leaves an opening in the lip.
Working as a speech therapist with the Autistic community, Rachel was not as familiar with all the current treatment for cleft palates, but with her training, she was aware that if not properly repaired, Blake would have issues with eating and speaking, and could suffer from frequent ear infections.
After meeting with the cleft team at Barrow’s Neurological Institute, a plan was made. Blake’s first surgery was at four months, where his lip was repaired. His second surgery was to place ear tubes to help prevent infection, and repair the palate with a dermis graft from a tissue donor.
Rachel expressed that cleft palate’s often have a third world country image. Many US medical missions are served with the purpose to repair cleft lips and palates in these countries. However, they occur with almost the same frequency in the US, where they are very successfully repaired.
Rachel and her husband were grateful to learn that while Blake did indeed have a cleft lip and palate, it had occurred without being a part of any other syndrome, and he was a healthy baby.
Blake’s repair was a part of a study to evaluate a better outcome for speech, using a z shaped suture line as opposed to the standard straight line.
“It’s almost like karma,” Rachel said, “my father passed away many years ago, and was a donor. I remember when our family received a thank you letter from a recipient.”
Just prior to Blake’s surgery, Rachel had professional family photos taken. “I knew I would miss his wide little grin” she said. “Even knowing this was best for him, my heart hurt a little that he would change”.
Indeed, Blake was a beautiful baby, both before and after his surgery, and is lucky to have two brothers to share his healthy life.
Strengthened to Serve Special Needs Children
Valerie Miller is an occupational therapist with a unique perspective of children with special needs. Since birth, she has struggled with dislocating kneecaps. Her right knee had been dislocating a couple of times a year. Despite multiple visits to doctors in her home state of Kentucky, no one could figure out the cause of her ailments. It was not until she was 28 years old while evaluating a patient during her clinical rotation that she saw similarities in her symptoms and decided to get an evaluation. Her suspicions were confirmed. She was diagnosed with Ehlers-Danlos Syndrome (EDS), an extremely rare disease that weakens the connective tissue in the body, causing joints to become extremely stretchy, skin to become hyperelastic, and blood vessels to be easily damaged.
A few years later, on the 4th of July, Valerie dislocated her knee as she stepped down a flight of stairs at her parent’s home. At this point, Valerie’s medial patella-femoral ligament (MPFL) had been torn so many times that her doctor seriously doubted it would ever recover. The situation was dire, so Valerie opted to try MPFL reconstructive surgery. Because of her EDS, using her own connective tissue was not possible. However, using donor tissue became an option through the gift of a compassionate donor family.
Valerie endured a grueling nine months of recovery and rehabilitation. Fortunately, she can finally enjoy the outdoor activities she missed for so many years. She now runs after her beloved cats and goes hiking with her husband and daughter. Valerie is grateful for the gift of donation and wrote a letter of gratitude to her donor's family. "If I were to meet my donor family, I would want them to know that I am truly sorry for their loss and that I am grateful for what their loved one's gift did for my life." Valerie is now completing her Ph.D. and spreads hope to her patients as she serves the occupational therapy needs of kids.
Back on Both Feet
At age sixteen, Alyssa Silva is like any other teen: she loves going to school, playing sports, and keeping up with her farm animals and younger siblings around the house. However, Alyssa's active lifestyle was threatened when her father's welding machine fell off a trailer while she was standing next to it, striking her ankle. Alyssa went to the hospital with a traumatic injury to her ankle and foot. While x-rays revealed that a nearby two-by-four had miraculously prevented Alyssa from breaking any bones or losing her foot entirely, the resulting scrape on her foot would worsen with time. "It was a very terrifying moment because we didn't know what to expect," Yeraldit, Alyssa's mother, said. "Then, a few days later, her foot started getting very red. It looked like an infection, and it had an unpleasant odor. So, we thought something was not right."
The following trips to the hospital revealed that Alyssa had an infected non-healing wound that was causing her severe pain and turning black. This prevented her from doing the things she loved like playing basketball, running cross-country or looking after her siblings. To save her foot, Dr Rene Amaya, a pediatric infectious disease and wound care specialist, explained that they would need to remove the dead tissue, negative pressure to the wound and administer a donor skin graft. Alyssa and her family were unfamiliar with tissue donation, but Dr. Amaya assured them of its' success.
In less than two months of receiving the skin graft, Alyssa, an aspiring veterinarian, was back on both feet and is now looking forward to showcasing her animals at the upcoming Texas rodeo. Thanks to her donor and the excellent medical care received, she returns to her life as a big sister, a sports enthusiast, and high school student. She is walking normally and has a full range of motion in her foot and ankle.
Alyssa and her family are grateful for the gift of donation and show great respect for those involved in the process. "I’m very pleased with how things turned out,” Alyssa exclaimed. “We’re blessed to have been able to save her foot,” her mother added. “It’s something that we’ll never forget and is now a part of our lives. If anyone would ever need tissue, I would want to help them, just like someone gave to help my daughter.”
Life Beyond the Limits
Annabelle Grace, affectionately known as “AG” is a talented athlete, artist, and big sister who embodies the word “resilient” with every step she takes. This Texas-born powerhouse has been conquering stages, fields, and classrooms for as long as she can remember. Not even AG’s greatest competitor, a rare childhood cancer known as Osteosarcoma, could stand a chance against her tenacious spirit. In 2019 at the age of nine, AG began experiencing severe muscle pain in her left arm and shoulder. Naturally, she and her family thought this pain was a byproduct of her very active lifestyle. However, as months passed and the pain progressed, AG’s parents began to realize that something wasn’t right. After getting many x-rays, tests, and a biopsy done, their greatest fear was confirmed: AG had cancer.
Following the diagnosis, AG’s mother, Leslie Bartel, learned everything she could to be the best possible advocate for AG. It was through this process that AG’s parents and medical team decided that limb salvage surgery would be the best course of action for their Osteowarrior. With the love and support of “the dream team”—Bartel’s close friends and family—AG began the chemotherapy process, hoping to shrink the size of her tumor and make her a viable candidate for limb salvage surgery. Her father, Eric Bartel, coined the phrase, “#AGTough” on Facebook. He said, “If we’re going to make it through this, everyone is going to have to be tough. We’ve got to keep her living to keep her fighting!”
Thankfully, after lots of prayer and many rounds of chemotherapy, AG’s tumor was just small enough for her to qualify for limb salvage surgery. With the help of a donated bone graft, AG was able to overcome the osteosarcoma treatment and recovery process. Refusing to let this obstacle get in the way of doing the things she loves, AG began living a life far beyond her limits. After months of hard work, dedication, and training, AG is now participating in her local cheer team and has won several tennis matches in a non-adaptive league, using only one arm!
AG, who is now in remission, makes a conscious effort with her family to reflect daily on the beautiful gift this donated bone graft has given her. When asked what they would say to her donor family, AG’s mother shared with tears welling in her eyes: “Thank you doesn’t seem like enough, but thank you. We truly do believe that AG has been given the miracle of life.”
Grateful for the Opportunity
For Jackie Skapinakis, life is all about family and the outdoors. Jackie, her husband, and her two sons spend their free time together boating and paddle boarding when she's not working as a compliance professional. She also enjoys spending time in the garden, trying out new crafts, and snowmobiling with her husband of 29 years. These enjoyments would be threatened when Jackie was diagnosed with breast cancer.
"I have a history of breast cancer in my family," Jackie explains. In addition to losing two grandmothers and two aunts to cancer, Jackie's mother died of pancreatic cancer. Before her mother died, she emphasized the importance of never missing a cancer screening. One busy afternoon, right before her six-month checkup, Jackie felt tempted to skip her appointment. "Things were crazy with work, and I really wasn't feeling up to it," she shared. "But my mom popped up in my head, and I remember what she said to me, so I went." Shockingly, the screening revealed that Jackie had stage I lobular cancer, an aggressive type of breast cancer. Since the cancer was caught early, doctors advised Jackie to explore other options, but she wasn't taking any chances. Jackie decided to have both of her breasts removed, followed by breast reconstructive surgery using donated tissue.
Though a registered donor, Jackie had no idea that she was a recipient of donated tissue until she received information following her surgery on how she could write to her donor's family. Grateful for the gift of a second chance and a speedy recovery, Jackie wrote a letter to thank her donor's family for their sacrifice and later heard back from them. "I think donation is much more meaningful when you truly understand that there's someone behind it," Jackie exclaimed. "I am so grateful. That's the only word that can describe it. I'm very, very grateful that I had this opportunity."
Fly Like a Butterfly
For aspiring nurse Joceline Perez Hernandez, helping others has always been a priority. In her spare time, Joceline loves a good run—a sensation she compares to flying. Overtime, she noticed a small stinging in her left knee, but did not think much of it. However, things changed one Thanksgiving when Joceline and her family decided to go for a hike, resulting in a bad slip that placed immeasurable pain on Joceline’s leg. She was immediately rushed to the ER.
After an examination, doctors confirmed that Joceline’s ongoing pain was caused by a benign tumor, located right below her left knee. “My whole world felt as if it were crashing down,” Joceline remembered. Months later, she was taken to the hospital to remove the tumor and strengthen her leg, but the damage was considerable. “The tumor was eating at my bone,” she added. “My condyle was worn out, almost completely gone.” It was then that doctors decided that Joceline would need surgery using an osteochondral tissue graft, utilizing donated cartilage and bone tissue. These donations would help save Joceline’s leg.
Today, Joceline is beyond grateful for her second chance at life. Thanks to the gift of her donor, Joceline can enjoy time with her younger siblings, volunteer in church, and continue her work as a certified nurse’s assistant. She is even considering becoming a donor herself. “No words can explain how grateful I am, and how much I appreciate all your loved one has done for me in my life,” Joceline writes to her donor family. “I am still recovering, but I feel like a caterpillar. I am learning to walk again, and one day thanks to your loved one … I will be able to spread my wings and fly, just like a butterfly.”
Stronger Than Ever
Bobbi Robertson is a powerhouse by nature. As a proud wife, stepmother, and psychiatric nurse, she loves making an impact on the lives of those around her. Her passion for mental health inspires her to help bring patients out of their darkest times. “It’s really rewarding watching a patient that was once depressed improve over time and leave hopeful, with a better outlook on life,” Bobbi shares. Little did she know that these experiences would help her push through one of her toughest battles—cancer.
In January of 2020, Bobbi found a concerning lump in her breast. Her mother had breast cancer, so she knew she needed to get checked out as soon as she could. When she received her cancer diagnosis, Bobbi launched into action. Genetic testing revealed that she was BRCA positive, so she made the decision to have a bilateral mastectomy and oophorectomy once she completed several rounds of chemotherapy. “I feel like the experience has made me stronger. The treatment, the hair loss, and all the people that helped me along the way. I knew I was in good hands, and I was going to be okay.”
When her doctors discussed her options for breast reconstruction, they mentioned that donor tissue would be used. Bobbi had always believed in donation, but her experience gave her a new perspective. “I didn’t know that you could donate things like skin and use it for surgeries like mine. It’s amazing,” Bobbi shares. “I think a lot about the person whose life was lost and their family. I’m sad that they had to lose somebody, but I want them to know that their life lived on in a way.”A Sisterly Bond
Growing up, Karen Hezlep shared everything with her two younger sisters. From dolls to clothes to secrets, it seemed that the trio would always be inseparable. “They’ve always been my best friends,” the wife and mom-of-two recalled. However, after the diagnosis of her youngest sister and the sudden death of her middle sister, Karen soon learned that the siblings shared something much more dire – breast cancer.
The death of her sister caused major ripples in Karen’s and her family’s life. “It came as a shock to all of us,” she explained. “She was fine one day and gone the next. It wasn’t until after her death that we learned she was also diagnosed with breast cancer.” Concerned for her health, doctors quickly placed Karen in a high-risk breast cancer program. After the first MRI screening, Karen learned she had cancer in both breasts. “There was a weird feeling of inevitability,” she shared. While the cancer required a mastectomy on one side and only a lumpectomy on the other, Karen requested a bilateral mastectomy, a decision that saved her life when the other side proved fatal as well. She was then given reconstructive surgery using donated human skin grafts. The donation reminded Karen of her sister, who was a nurse and donated her corneas to help give others the gift of sight.
Today, Karen is cancer free and grateful to have more time with family and friends. When looking at her new body, she remembers her sister and the immeasurable gift her donor has given her. As a donor herself, Karen was eager to let her donor family know what their sacrifice meant to her. “Thank you for giving me the chance to have my life back and to feel normal again,” Karen wrote. “I can’t put a price on it, and I’ll never be able to explain how grateful I am for that gift.”
The Power of Prevention
Long before her close encounter, Simone Henderson knew a thing or two about cancer. As a proud business owner, Simone has been helping female cancer survivors regain their confidence through wigs and hair styling for almost twenty years. Through her client’s stories, she learned about the importance of breast cancer prevention in black women, who are more likely to die from breast cancer at any age than in other demographics. The reality of cancer grew more apparent when Simone’s sister was diagnosed in 2019, sending her on a long journey that ended in her death only a week after stopping treatment. Concerned about her own health, Simone scheduled a mammogram and later learned she was positive for the BRCA gene mutation. With a 70% chance of breast cancer and a 40% chance of ovarian cancer, she knew it was time to take preventative action.
“It was all happening very fast,” Simone said. Things moved even faster when she found out she was pregnant with her second child, a baby boy born with a cleft palate. After her son’s birth, Simone consulted with her surgeons. “She underwent three devastating surgeries that strip you of your womanhood—a bilateral mastectomy, oophorectomy, and hysterectomy,” plastic surgeon, Dr. Samita Goyal, shared. “For me, the procedures were a no-brainer,” Simone recalled. Following the mastectomy, she decided to undergo reconstructive surgery using donor skin grafts.
While statistics show that black women are less likely to take breast cancer screenings or cancer prevention measures, Simone advises all women to act. “There are so many women whose hair I’ve cut, whose hands I’ve had to hold as they went through cancer,” she explained. “Taking preventative measures reminded me that I did have an option, and I want others to know that too.”
Today, Simone is feeling more confident than ever. A registered donor herself, she is grateful for her new body and for the gift of empowerment her donor has given her. The energetic social media influencer continues to use her platform to share her story and spread awareness. “I want to inspire everyone to be proactive, to take care of themselves,” Simone shared. “I’m excited that I did have a choice! I’m so thankful.”
Hope to Change the World
Werkneh Ourga's story is far from ordinary. While most little boys spend their days on playgrounds and soccer fields, Werkneh's youth was spent in hospital beds in Ethiopia. At the age of six, Werkneh developed Ollier's disease, a skeletal disorder that caused enchondromas - non-cancerous, cartilaginous tumors that grew on both of his hands, making it impossible for him to function. "My hands grew to the size of soccer balls, and it felt like I was carrying around a heavy rock or a small baby," Werkneh shares.
The impact of these tumors was far beyond the physical. In the small village where Werkneh grew up, deformities were associated with demon possession and often looked down upon. Consequently, Werkneh was not able to attend school as a child. Even though he was completely shut out of society, Werkneh remained positive. "Even in pain, I was smiling. That's one thing I always do—smile," He shares, "I try my best to spread joy and happiness." Eventually, Werkneh was dropped off at an orphanage for sick children. Due to Ethiopia's lack of resources, Werkneh's only option was limb amputation. While amputation recovery is feasible in the United States, surviving the surgery in Werkneh's small village was almost impossible, and he would have died.
While at the orphanage, Werkneh was introduced to a group of physicians that were determined to turn his life around. They connected him with Dr. David Kulber, a plastic surgeon and orthopedic hand specialist at Cedar Sinai Hospital. With the help of his sponsors, Mending Kids and Ohana One, Werkneh would fly to the U.S. for surgeries and return to a boarding school in Ethiopia over the next few years. Dr. Kulber performed numerous surgeries using donated human tissue and bone to restore his hands to a full function with a normal appearance.
The surgeries and donated tissue enabled Werkneh the opportunity to take full advantage of everything life has to offer. While his hands were functional, the visible scars would still make him an outcast and unsafe to continue living in his country. At the age of 16, Werkneh permanently moved to the U.S. where he was adopted by a family and had a large support system of families who cared for him during his trips to the U.S. as a child. Today he is grateful for his fully functioning hands - he's won races, participated in school plays, and is currently attending college on a full scholarship. Werkneh shares that he hopes to make a difference in this world. To his donor family, he says, "I really appreciate your generosity. Thank you for giving me hope to change the world."
A Tale of Two Sisters
Labor delivery nurse Jackie Avers is no stranger to the impact of donation. As a life-long supporter of breast cancer awareness and sister to a tissue recipient, Jackie saw the life-changing effects of donation firsthand when her sister, Donna, received a tendon graft following an injury on a ski trip. When Jackie experienced a fall while riding horses in 2017, little did she know that she would be brought even closer to the world of donation.
While doctors had initially believed there was no damage, Jackie’s fall would cause years of pain in her knee and ligaments. “It got to the point where I couldn’t straighten my leg,” she shared. “I would need help just to pop it back in.” Things worsened in 2020 when Jackie found herself unable to move after merely holding her sleeping grandson. Desperate for help, Jackie sought a physician who confirmed she had torn her meniscus and ACL and later scheduled surgery. “Donna had actually informed me that I would be given MTF tissue,” Jackie explained. “I thought that was pretty neat.” For her ACL surgery, Jackie received a donated tendon graft, the same type of graft her sister received years prior!
Now, after months of recovery, Jackie is feeling better than ever and has regained her life of independence. Thanks to the gift from her donor, she returns to the activities she loves, like taking walks, cycling, and helping others in need. As a recipient and medical worker, Jackie feels forever indebted to her donor and holds their family in the utmost respect. When asked what she would say to her donor family, she states: “Words can never truly explain what your loved one’s sacrifice means to me. Not only have you changed me and my family’s life, but the lives of so many others as well. For that, thank you.”
Tendon Graft Recipient
Enjoying a fun day of sledding with her boyfriend, high school Junior Kylee Reese had no idea that the day would end with a serious injury, a future looming with several surgeries, and becoming a tissue recipient. “I was on the back of the sled,” said Kylee “so I really didn’t see what happened. All I know, is we hit a ditch, and when we landed, I landed in the worst way possible. My leg was completely messed up.”
In the small mountain community, the only medical facility was an Urgent Care Center, who realized that Kylee needed much more care than they could provide, so she was driven over two hours to her hometown of St. George, Utah. She was diagnosed with a bimalleolar fracture, a serious fracture of the ankle, where the ligaments are also damaged. In addition, she tore virtually every tendon in her knee, and they were struggling to find adequate blood flow in her leg, resulting in the doctor’s considering amputation. Fortunately that did not become the case. While they were able to complete the surgery on her ankle, the repairs to her knee did not go as well. She had multiple surgeries attempting to repair her knee, and was told that healing would just take time. Meanwhile, Kylee was struggling with frustration and depression. Deep down, she knew her knee wasn’t healing appropriately. After a month of on-line school, she had to return in a wheelchair. Her parents decided to get a second opinion at the University of Utah and were told all the reconstruction on her knee had to be redone, and this time donor tendons would be used.
“Although this was bad news,” said Kylee, “it has been the best thing that’s happened throughout this whole experience. I got my knee reconstructed on December 9, 2021, and have been recovering great since then!” Kylee felt it was important to express her gratitude to her donor family. “This tissue donation has changed my life in so many positive ways, so I want to thank your family. I will forever be grateful for this tissue donor. Thank you again from the bottom of my heart for making this decision to donate at such a difficult time. Your family will remain in my thoughts with appreciation for your generosity and kindness.”
The Gift of Service
Retired military policeman Steve Culver dedicates his active life to service. Serving in the Air Force for over 23 years, Steve and his wife enjoy hiking, camping, traveling with their terrier dog Milo, and teaching self-defense classes in their community. However, when Steve was unexpectedly diagnosed with Type II Diabetes during a routine check-up, he knew his life would drastically change. “I was shocked when I found out, but I was determined to do what was needed to manage my health,” he remembered. Though dieting helped improve Steve's weight, the disease still progressed, resulting in negative changes.
During the wintertime, Steve noticed a small crack in the skin on his left foot. “I didn’t think much of it,” he shared. “I put some on Neosporin, a band-aid, and went about my day.” Instead of healing, the crack became more extensive, leaving an open wound in Steve’s foot. He knew it was time to see a podiatrist. “I was told it was a foot ulcer,” Steve recalled. “I never would have thought that.” He hoped that the use of topical treatment and off-loading – a technique used to take pressure off the foot – would heal his wound, but the ulcer showed no improvement, causing Steve to seek a second opinion with another podiatrist. “We spoke, and eventually, he explained it was time for surgery,” Steve said.
To lower Steve’s cavus foot – a foot with a high arch – his podiatrist scheduled surgery involving donated tissue, including adipose, to flatten the arch and relieve pressure off the wound. The donated gifts would surprisingly be Steve’s second time receiving tissue grafts, following a previous shoulder surgery that used gifted tendon and bone.
Thanks to the donated human tissue, Steve’s foot ulcer is now closed, and he returns to his life of serving others and spending time outdoors. A registered donor and life-long supporter of donation, Steve is eternally grateful for every gift and hopes to serve others in the same way. “I’ve been so blessed to have received your loved one’s gifts,” Steve wrote to his donor family. “When the day comes, I’m glad to know I can one day save and help many people through donation, just like your loved one helped me.”
Active Again
Medical librarian Manuel De La Cruz Gutierrez, isn't your typical dad in his mid-forties. When he isn't working, the father of five enjoys boarding of all kinds, including snowboarding, surfing, and learning new tricks on his trusty skateboard. "I've always been an active person," Manuel shared. "I've been skateboarding since I was twelve, and I really love using my legs." However, when a slip on a skate ramp resulted in severe pain, Manuel feared that his active lifestyle would be endangered.
"I was going forward, and my body was moving with the board, but not my leg," Manuel recalled. "I planted my leg on the bowl's wall and felt my knee shift. It was incredibly painful." After a fellow rider helped him to his feet, Manuel had no choice but to drive to his wife with an injured leg and was then taken to a doctor. "They thought I sprained my lateral ligament, and I was told I should be fine in a few weeks," Manuel continued.
Believing his injury had improved, Manuel then spent the next five weeks running on the sprained leg, an occurrence that only stopped when he recreated the damage on a hike, resulting in more pain than before. "I knew I had to see an orthopedist," he shared.
After an MRI, specialists confirmed that Manuel had completely torn his ACL with an additional meniscal tear. The injury would require surgery using a donated human tendon, something Manuel had not been familiar with. "I've heard of tissue donation before, but it's not something talked about in our culture," he explained. "Now that I'm a recipient, I think it's great."
Thanks to his donor's gift, Manuel can now get back to the things he loves most, like being active with friends and family. As a registered donor, Manuel is grateful for his donor's sacrifice and encourages those in his community to be open to organ and tissue donation. To his donor family, Manuel says: "Thank you for the second chance to be active again. Your loved one has made a difference, even after they've been gone. I can never repay you for your kindness and generosity."
The Road to Reconstruction
For Dr. Angela Rodi, the road to breast reconstruction has been a long one. The wife and OB-GYN first encountered the topic during her teenage years, when her mother tested positive for the BRCA gene mutation. Her mother knew that a positive test meant that there is a 70% likelihood of developing breast cancer and decided have a double mastectomy and oophorectomy.
Though her mother had advised her to get tested, young Angela wouldn’t fully understand the need to get tested for several years. “I was in medical school when I really started to meet breast and ovarian cancer patients and see firsthand the importance of getting tested,” Angela shared. “I figured I would test and get it out of the way.” Surprisingly, the results revealed that she was positive for the BRCA gene only months before her wedding and the start of her OB-GYN residency.
Focused on her career and home life, years went by before Angela finally decided to have a double mastectomy and breast reconstruction after finding a lump in her breast. Though she was nervous about her surgery, Angela remembered the story of a diagnosed friend and the success of her mother’s surgeries and knew it was the best decision. “My friend and patients never had a chance to prevent their cancer, but I did.” she explained. “It felt empowering to take charge of my health and womanhood.”
Before her surgery, her surgeon informed Angela that donated skin grafts would be used to aid a fast recovery and satisfying results. “I was shocked at how comfortable and happy I was,” Angela recalled. “I’m glad I made that decision.”
Today, Angela feels forever indebted to her donor family for their generosity and sacrifice. Thanks to the gift from her donor, she continues to do the things she loves, like biking, hiking, and spending time outdoors with her husband and blue heeler, Zep. As a physician, registered donor, and genetic counseling advocate, Angela encourages everyone to get tested and consider becoming donors. “I am beyond humbled to have received such a generous gift,” Angela wrote to her donor family. “Know that I will keep you and your loved one in my heart, and that your family member lives on.”
From Surviving to Thriving
Robin Lewis was enjoying life as a successful executive when she received shocking news. Her aunt called, saying she found a lump and was diagnosed with breast cancer. This alarmed Robin because cancer runs in their family. Her mother had breast cancer, and her grandmother also died at an early age from the disease.
“Robin, I never miss a mammogram. I just happened to have been doing a self-exam and felt it,” her Aunt Terri said. The wheels of concern began churning in Robin’s head. Later that evening, Robin did a self-exam. To her surprise, Robin also felt a lump. She immediately made an appointment with her physician who referred her for imaging. While Robin was dressing after her mammogram, the nurse said: “Don’t get dressed. The doctor wants to examine you right now.” After scoping both breasts, the doctor revealed he was 99% sure there was cancer on both sides.
Although a biopsy later confirmed cancer, the surgeon said these reassuring words, “Yes, you have cancer, but you don’t need to get your affairs in order!” Robin breathed a sigh of relief. Her thoughts immediately shifted from surviving to thriving.
Because of Robin’s past experience working in donation and transplantation, she has a special appreciation of the impact donated tissue makes in the lives of recipients, and is especially grateful to receive the gift of life. “I feel younger and more vibrant, so I’d tell my donor thank you for making my life better,” she reminisced. “Because I caught it early, I was able to avoid chemo,” she exclaimed.
"I’m grateful to my donor families for their generous gift of skin that helped me heal after a bilateral mastectomy. It allowed me to get back to a sense of normalcy and enjoy special moments with my family."
Today, Robin enjoys a life doing what she loves best—spending time with her husband, son and daughter, grandkids, and her European Golden Retriever.
A Fighting Chance
Charlie Watts is a fighter at heart. In his spare time, the middle schooler loves going to karate classes, running about on the soccer field, and spending time with family. “Charlie has always been an active kid,” mom Jessica shared. On an occasion, while playing with his younger brother, Charlie accidentally crashed into a wall, resulting in a bruised shoulder, two broken toes, and unimaginable pain.
Concerned for their son’s worsening toes, Charlie’s family rushed him to an orthopedic surgeon who assured them that their son would be fine with a corrective boot. Believing Charlie had healed, the family returned to their daily routines, unaware that their lives would soon change forever.
“Charlie was running at soccer practice when I noticed that he was holding his arm a lot,” Jessica recalled. “He told me his arm would sometimes hurt. I knew something was wrong”. Again, Charlie was taken to a doctor to x-ray his worsening arm. After many stressful screenings and transfers, doctors at St. Jude confirmed the family’s worst fear: Charlie had Ewing’s sarcoma, an aggressive bone cancer. “It was especially traumatic for us because it was our second run-in with cancer,” Jessica explained. “Charlie had an aunt who passed away when we were young. The idea of having to go through that again was terrifying.”
With a 70% chance of survival, doctors informed the family that Charlie would require chemo and surgery using a donated bone graft to replace parts of the cancerous arm. Though nervous about the donation, the family agreed, knowing it was the best option. “We had to trust at that point,” Jessica shared.
Now, post-surgery, Charlie enjoys life cancer-free with two healthy arms! Thanks to the gift from his donor, he maintains his fighter spirit as a member of his school’s Varsity soccer team and continues to dream of becoming a pilot. When contemplating their donor family’s sacrifice, Charlie and his family are forever grateful for the immeasurable gift of a second chance. Using the trending hashtag, “#FightCharlieFight,” they aspire to bring awareness to children’s cancer and the importance of tissue and organ donation for individuals everywhere.
“I can’t thank our donor family enough for what they’ve done,” Jessica stated. “Their sacrifice gave my son a fighting chance. We’re so very grateful.”
A Grateful Heart
Cameryn Plemons loves her active and fulfilling life. When the college student isn’t in pre-med classes, she enjoys spending her time running on the track field and connecting with others. She even looks forward to a career in sports medicine, combining her passions for athletics and helping those around her. “I love sports, but I also love encouraging people,” Cameryn shared. “I’m grateful to be able to do both.”
However, when an old sports injury caused new and severe pain, Cameryn feared that her world would drastically change. “I first injured my knee at basketball camp, but I didn’t think much of it at the time,” she recalled. Cameryn, an avid basketball player, continued to train and play on the injured knee until the pain worsened. After an extensive surgery and gradual recovery, Cameryn discovered a new and exciting passion in cross country and track. “I fell in love with running and competing,” Cameryn smiled. “When I ran, I felt at home. And then the pain came back.”
After trying to push through again, Cameryn was taken back to doctors, who informed her that she would never run again. With little hope, Cameryn and her family sought a second opinion and were referred to an orthopedic surgeon with promising news. “He told me that he believed the surgery could restore my ability to run,” she recalled. “It was a dream come true!”
In June 2019, Cameryn received an osteochondral allograft surgery using donor tissue, a sacrifice she did not take lightly. Three months after her surgery, Cameryn was back on the track field and more grateful than ever. Thanks to the gift from her donor, she enjoyed a pain-free recovery, a deeper appreciation for her aspiring career, and a new outlook on life. “I can’t explain what this experience has meant to me,” Cameryn shared. “Every time I run or walk or train, I’m overcome with gratitude.”
A registered donor herself, Cameryn was eager for the opportunity to write to her donor family. “Thank you for choosing to donate and for letting me be a part of your loved one’s memory,” she wrote. “I promise to honor their gift and their sacrifice with every step I take.”
An Act of Kindness
McKenna Powers is one kind soul. With a big heart and an even bigger smile, McKenna is quick to share a kind word with those at church, Youth group, and whoever crosses her path. "She's a very sweet, bubbly girl," Erin, McKenna's mom, shared. "More than that, she's very passionate about her faith."
Though strong in spirit, genetics caused McKenna to have very weak ligaments, which posed a significant threat to her down the line. "She used very to be active," Erin recalled. "She really loved soccer. Then, we noticed that her knee kept getting injured during every game. That's when we knew it was serious."
After surgery in January 2019, McKenna and her family hoped they had seen the last of her injuries, but things worsened later that year. "It got to the point where my knee was dislocating every day," McKenna added. Following another trip to the hospital, doctors scheduled a second surgery to replace the weakened ligaments using a donor's tendon. "They told me they'd be using tissue from a donor, and I thought: 'ok, cool,'" McKenna laughed. "I didn't see a problem with it."
Today, McKenna is back to life as a regular teen. Thanks to the gift from her donor, she continues to bring smiles to those in her Youth group, family, and friends. Her experience has inspired Erin and other family members to become donors. "I think it's cool that donation allows you to help someone or even save their life," McKenna explained. "This experience has changed my life in so many ways, and I can't thank my donor family enough for that."
Living the Dream
Suzanne Springer loves the simpler things in life. For years, the registered nurse and mom of three has enjoyed helping migraine patients, spending time with her children, and staying active with modest exercise. “I used to love sports,” Suzanne shared. “It sounds silly, but I always dreamed of putting my babies in a stroller and going for a run.” However, after years of athletics caused severe injuries to her knee, Suzanne feared that her dreams would never be realized. “It started my senior year of high school when I used to play basketball,” she recalled. “I hurt my knee badly and had to go to rehab. I thought I was fine.” Following high school, Suzanne received a softball scholarship for college and continued to play rigorously until her sophomore year. “I was chasing a ball in the outfield when I suddenly heard a loud ‘pop!’ ” she stated. “Sure enough, I injured my knee again. Things weren’t the same after that.”
After a failed surgery and months of pain, Suzanne finally had her meniscus removed in 2005. For the young athlete, the surgery meant devastating results. “I wasn’t able to run, jump, or play sports for years,” Suzanne remembered. “As someone in their early twenties who had been active their whole life, it was really difficult to deal with.”
After years of modifying her movement and activities, Suzanne decided enough was enough. In 2018, Suzanne consulted with her doctor and was approved for meniscus transplant surgery, which utilized donor tissue. “I was a bit skeptical at first, but I knew I was making the right decision,” she shared.
Today, after 18 years, Suzanne is living her dream of running and staying active with her family. Thanks to the gift from her donor, she happily spends her days traveling, hiking mountain trails, and chasing her little ones around the backyard. As a registered donor herself, Suzanne takes the sacrifice of her donor family to heart. “Having this experience has meant so much to me,” she smiled. “Knowing I have the opportunity to change lives like this is amazing.” When asked what she would say to her donor family, Suzanne shared with tears in her eyes: “Thank you for being so gracious with your loved one. You’ve gifted me a happier, more fulfilling life. I can never fully express my gratitude.”
Sweet Treats and A Helping Hand
For the past 50 years, Nancy Burgeson has dedicated her life to teaching baking classes to her community. Her goods are so delicious that Nancy is often featured on the local television program "Twin Cities Live," where she regularly shares her baking secrets with families across the county. "My hands are such an important part of my work," Nancy shared. "I'm lucky enough to have a job that lets me help people. When I'm working with students or young mothers, I know their children will have stories to tell about the cakes or the bread that their loved ones made. It's really special."
However, when decades of baking suddenly caused significant pain in her thumbs and wrists, Nancy feared that her years of helping others would soon end. "I tried to push through it at first," Nancy remembered. "I took a few cortisone shots and went back to work. Then my left hand started bothering me, and I couldn't even pick up a spatula. That's when I knew it was serious."
After consulting with a doctor, Nancy learned that she had arthritis in both thumbs and would need surgery using donor tissue. Though members of her family have had experiences with tissue donation, it would be Nancy's first personal experience receiving donor tissue. "I was nervous about it at first," Nancy shared, "then I remembered all the good tissue donation did for my husband after his surgery. I knew it was the best option."
A month after her surgery, Nancy's thumbs returned to normal, and she was back teaching the classes she loves. Because of her experience with donation, she has registered her decision to be a donor and is now a strong advocate for organ and tissue donation. "I'm so blessed to have had that option," Nancy smiled. "My hands are like brand new!" When Nancy learned about the opportunity to write to her donor's family, she didn't hesitate. "Thank you for the special gift that your loved one has given me," Nancy wrote. "I wish I could hold your hands in mine. I can't thank you enough."
A Donor's Gift Returned
During a challenging day at the gym, competitive Outrigger canoe paddler Michelle Bradley dropped from the monkey bars, and landed in the perfectly wrong position, rupturing the ACL tendon in her knee. The injury grounded her in more ways than she could imagine.
A married mother of two, and powerful athlete, Michelle had been paddling since she was 11 years old, treasuring the ocean around her home state of Hawaii and voyaging from island to island with her teammates. It would be almost a year before she could participate again. During long endurance races, teams have to change out paddlers mid-race which involves an escort boat dropping replacement paddlers in the ocean to line up ready to climb in the outrigger canoe as it passes at relatively high speed, and the now exhausted team members exit into the water to be picked up, rest and repeat. These water exchanges can occur at intervals of 20 to 30 minutes. Strong legs are imperative. Michelle had to wait about a month for her tendon replacement surgery, and recovery was another 9 months before she was cleared for everything.
Receiving a posterior tibialis tendon from a donor has her back in the water, back in the gym doing Crossfit, and enjoying her family and her job teaching Science to middle school and high school students. She is currently training for a long endurance race from Molokai to Oahu. During her recovery, Michelle wrote to her donor family to thank them. “Your loved one’s tendon is truly a gift to me that will allow me to return to my very active lifestyle in Hawaii. A day doesn’t go by that I don’t think about the amazing things doctors can do, and the overwhelming generous gift your family gave to me. Mahalo, Michelle”
Helped to Heal
Musician and wellness practitioner, Janice B. dedicates her life to helping others heal. As a songwriter and a practitioner of the healing technique Reiki, Janice combines her passions for music and alternative medicine to help others find healthier ways to find peace and relaxation. "In my music and healing work, I encounter people from all walks of life," the mom and wife shared. "For me, it's about connecting with as many people as possible and helping them on their journey to heal."
However, when an old injury caused constant pain years later, Janice found herself in need of some serious healing as well. "It started with a car accident when I was 18," Janice recalled. "At the time, I had whiplash and just a few scratches and bruises. Later in life, it affected my neck, arm, and left side."
After her injury, Janice continued on with life working and performing. "My foot started hurting, and my toe had become unaligned. I was at the point where I couldn't walk without pain," she remembered. "I knew I had to do something."
To straighten her toe, doctors scheduled an initial surgery for Janice using a metal clip that worked temporarily, but the pain returned five years later, this time in her foot and ankle. After another examination, doctors confirmed that her joint and instep were causing her discomfort and would need to be supplemented with a bone graft from a donor.
Though not excited about a second surgery, Janice was confident in the success of the donation. "The great thing about it was that it wasn't a metal piece or clip but a natural fiber," Janice explained. "I knew I was in good hands." Today, Janice enjoys pain-free mobility and returns to life onstage and in the office. Thanks to the gift from her donor, she continues to help others through music, meditation, and her own journey to healing. "It's amazing what this has done," Janice smiled. "I barely walked before. Now, all that pain is a distant memory!"
When asked what she would say to her donor family, Janice – overwhelmed with gratitude- stated: "Thank you for your generous gift. It's a difficult decision, but you've helped so many people and changed so many lives through your sacrifice. Because of you, I can go back to the life I had before. I can't thank you enough!"
A Special Bond
Erika Sparks has always had a special connection to organ and tissue donation. As a former pageant girl, she spread awareness for donation after her grandmother’s successful kidney transplant.
Years later, as an active mom of three with a passion for creativity, Erika is still moved by the experience. “Donation has always been a part of the narrative of my life,” she smiled. “It gave me more time with my beloved grandmother.” However, when a fun pastime with her daughter resulted in a severe injury, little did Erika know how much her words would hold true. “I was 16 when I first hurt my knee,” Erika recalled. “I was playing volleyball and injured my patellar tendon, so I had to have knee reconstruction. I thought that was the end of it.”
Believing her knee troubles were behind her, Erika spent her adult years hiking, playing sports, and staying active with her young daughters. One day, while playing volleyball with her oldest, Erika misstepped and heard an unsettling: pop! “Just like that, I couldn’t even stand,” she remembered, “It was really scary.” Immediately, Erika was taken to an orthopedic urgent care and given an MRI the next day. Results revealed that she tore a ligament in her left knee and would require a choice of two surgeries: a lengthy procedure involving repairing her damaged tissue or surgery utilizing donor tissue. For Erika and her family, the choice was easy.
“We wanted the best result that would last as long as possible,” she explained, “For us, that meant utilizing the opportunity to receive a tissue donation.” Within two months of surgery, Erika was back to her active lifestyle and back to spending time with her family. Thanks to the gift from her donor, she continues to run, dance, play sports with her daughters, and advocate for organ and tissue donation. As a registered blood and organ donor, Erika did not take her gift lightly. “If it weren’t for this donor ligament, I wouldn’t be able to live the life I once did with my family,” she shared, “I knew I had to thank them personally.”
After sending a letter to the donor's family, Erika was thrilled to receive a response with the story of her donor and a bit about their life and background. “It was great to be able to put a face to this whole process. My daughter was with me through everything and told me she couldn’t wait to be an organ donor one day. It’s really special to come full circle on such a life-changing experience.”
Active in Every Way
Karen Bray has always been active in more ways than one. When the retired photography teacher is not volunteering or advocating for health causes, she enjoys hiking, biking, kayaking, and watching her son shred the slopes as a skilled snowboarder. "Health has always been so important to me," Karen shared. "I do everything in my power to keep myself and others healthy."
However, when an innocent ski lesson turned into a terrible accident, Karen feared her health and activism would be in danger. “At the time, I hadn’t seen my son ski because I wasn’t skilled in going downhill, but I decided to surprise him by taking lessons,” Karen smiled. “I was enjoying myself until about the 10th lesson; that’s when things took a turn.”
While learning with her instructor, Karen slipped, resulting in a dislocated knee. Unfortunately, pain and instability would plague her for months before doctors decided to take serious measures. “The first suggestion was knee replacement surgery, and I really resisted that,” she recalled. “I knew it would prevent me from being as active as I wanted.”
As a compromise, doctors countered with tendon replacement surgery, a low-risk option Karen had not been previously considered. “I had heard of people donating organs but never of something like ligaments,” Karen shared. “It made me think of all the transplants my family members have had and how much smoother things would have gone if they had received tissue donation.”
Following her surgery and recovery, Karen returns to her healthy and active life. Thanks to the gift from her donor, she continues to ski, hike, play with her young grandchildren, and volunteer in her community. Karen is so moved by her experience that she is now a vocal supporter of organ and tissue donation. “I’ve always believed in donation, but it’s different when you’re on the receiving end,” Karen reflected. “Without this donation, I would not be able to do any of the things I love. Now, I try to do everything I can to honor this sacrifice.” After her surgery, Karen jumped to reach out to her donor’s family. “Thank you for donating your loved one’s tissue. It takes a huge amount of caring for others,” she wrote. “Part of your loved one lives on in me, and I am forever grateful for the possibility of living a normal, active life.”
Can’t Keep Me Down
There’s not much that can keep Chris Rosenberg down. When he isn’t working in medical publishing, Chris and his wife spend their time hiking, visiting national parks, and participating in charity rides to raise funds for various cancer and research societies. “We like to travel, and we like to stay active,” he shared, “So, mobility is really important to me.” However, when a series of knee injuries caused major discomfort, Chris feared it would end his active lifestyle.
“It started in 2013 when I was riding the bus,” Chris recalled. “I stood up to offer a woman my seat, and next thing I knew, everyone heard a loud ‘pop’!” Chris would later learn that he had torn his ACL and after surgery to replace it, would tear it again on two separate occasions. It wasn’t until 2022, after a nasty fall at a basketball game, that Chris would reach the point of no return . “I didn’t think I’d need another surgery, but I felt my knee slipping out from under me when I would walk or even go up the stairs,” he explained. “I knew I had to take action.” Doctors confirmed that Chris had again torn his ligament and would again require surgery using donated tissue. Though it would be his third knee surgery, Chris eagerly agreed. “I was given a few options, but I just wanted the best and quickest way to get back to my life,” he shared. “For me, that meant donor tissue.”
Today, Chris enjoys full mobility and is more grateful than ever. Thanks to the gift from his donor, he continues to hike, travel, and help others by staying active. His cycling has recently raised funds for the American Cancer Society, Multiple Sclerosis Society, and Juvenile Diabetes Research Foundation. As a registered donor, Chris jumped at the opportunity to let his donor family know the impact of their sacrifice. “The things I’ve done with this knee, the places I’ve taken it, and the people I’ve helped; it wouldn’t have been possible without your donation,” he shared. “Know that I’m so thankful for your decision and know it’s done good for others as well.”
A Blessing in Disguise
Nicole “Nikki” Dean dedicates her life to community service as a correctional officer and a competitive youth gymnastics and cheerleading coach. When years of ligament damage caused her to almost completely tear her ACL, Nicole knew she needed to see a surgeon and undergo corrective surgery to get back to the work she loved. To repair her ligament, doctors informed Nicole that she would receive a donated tendon. Though it was her 4th knee surgery, it would be Nicole’s first time receiving donated tissue and her most successful operation yet.
Within just 5 months, Nicole was back to coaching, back on the field, and back to serving her community. Thanks to the gift of her donor, she enjoys a healthier lifestyle and more time with family and friends. As a registered donor, Nicole’s experience only deepened her passion for the miracle of donation. “It’s all helped me further understand what a good thing donation is,” Nikki shared. “It’s been a blessing in disguise. I can’t thank my donor family enough for their decision.”
Back to Business
For Tom Mody, life can’t be slowed down. When he’s not running his own business, the father-of-two spends his time composing and recording music, and playing his lifelong passion, tennis. However, when a slip on the court led to a serious knee injury, Tom feared that he would never return to his active life. “It was painful at first, but I had injured my knee years before,” Tom shared. “I figured I could wait it out.” After weeks of sitting out matches and missing out on activities with loved ones, he knew he had to seek medical help.
Doctors confirmed that Tom had torn his ACL and could receive surgery using a donated human tendon. Though it would be his first experience with tissue donation, he knew he was making the right choice. Within a few months of recovery, Tom regained his mobility and returned to the life he loved.
Thanks to the gift from his donor, he is now back on the court, back in the studio, and back to spending time with family. As a first-time recipient, Tom enjoys a newfound appreciation for the miracle and impact of organ and tissue donation. “It’s been an amazing experience for me,” Tom shared, “and it’s opened my eyes to a lot. I had to write to let my donor family know that I’m so very grateful.”
The Life I Knew
Deborah Dodson enjoys the simpler things in life. When she’s not working in radiology, the wife and mother spends her time in the countryside relaxing with family, playing with her two dogs, and working out. “I’m pretty active,” Deborah shared, “and I love what I do.” However, when a small sharp pain led to a debilitating disease, Deborah wondered if she would ever return to the life she knew.
“It started a while back when I noticed a shooting pain in my neck,” Deborah recalled. “Little by little, It was getting worse.” Though on medication, the pain would reach an all-time high when Deborah suddenly found herself unable to lift weights. "It was constant from then on,” she explained. “I couldn’t sleep, I could barely move, and I couldn’t go anywhere without an ice pack. It was horrible.” Tired of the discomfort, Deborah sought a specialist who confirmed she had flattened her disc and developed degenerative disc disease, edema, spinal cord stenosis, and more. To replace her discs, doctors scheduled surgery using donated tissue.
Within a month, Deborah was fully recovered and happier than ever! Thanks to the gift from her donor, she is now back to work, family, and a pain-free life. “I feel fantastic,” Deborah smiled. “I didn’t think I could again.” As a registered donor, the experience deepened her appreciation for donors and donor families everywhere. “It may have just been my neck, but my donor really saved my life,” she shared, overcome with emotion. “I needed to let the family know. I can’t thank them enough for that.”
A Changed Life
Former medical assistant Ann Scheibl loves staying active and helping others. However, when a genetic disease caused her knee to severely dislocate, Ann feared she would never return to the activities she loved - like hiking, biking, and fishing with her three daughters. Unable to withstand the pain, Ann visited the ER and was shocked to discover the results of her CT scan. “My tendon and ligaments were torn in pieces. There was nothing holding my knee in place,” she recalled. “I thought I wouldn’t move again.” To repair her knee, doctors scheduled reconstructive surgery using a donated human tendon.
Today, Ann enjoys full mobility and returns to life outdoors. Thanks to the gift from her donor, she is back to walking, running, and spending quality time with her daughters. Only after her operation did Ann learn that she received donated tissue. As a registered donor, she didn't take the sacrifice lightly. “This experience has definitely changed my life,” Ann shared. “Without the family’s sacrifice, I wouldn’t be able to see my friends, leave my house, or enjoy activities with my daughters. They’ve given me my life back. I can’t thank them enough.”
Nothing to Lose
Brenda Larkin lives an active and fulfilling life. When she’s not working in insurance, you’ll likely find Brenda outdoors or in the gym, jogging, doing yoga, or spending time with her beloved rescue animals. She even volunteers at her local animal shelter. “I love staying mobile, and I love what I do,” Brenda smiled. Unfortunately, when years of recreational sports caused major discomfort in her joints, Brenda wondered if she would ever return to her active life.
“It started with a small pain in my knee,” she recalled. “I didn’t think much of it; until suddenly I was having trouble moving around and working out.” The pain sent Brenda to a doctor who informed her of a tear in her meniscus and assured her he could correct it with surgery. Soon after her operation, the pain returned with a vengeance. “I was still having a lot of problems and wasn’t sure why,” she explained, “I knew I had to find another option.” Brenda sought a second opinion and was presented with the choice of surgery using donated tissue. Though it would be her first experience with tissue donation, Brenda was more than willing to take the leap. “I tried other options, and they didn’t work,” she shared, “I figured I had nothing to lose.”
Today, Brenda is back to her active lifestyle and the life she loves. Thanks to the gift from her donor, she returns outdoors, continues to play her favorite sports, and chases around her playful pets, Phoebe and Miss Pretty. As an appreciative recipient, Brenda now uses her story to inform others of the positive impact of tissue donation. “I hadn’t known tissue like that could be donated,” she smiled, “now, I tell everyone I know about the good it’s done for me!” Brenda couldn't wait to express her gratitude when told she could write to her donor family. “I’m so very grateful for you and your loved one,” she shared. “Your sacrifice helped me return to my life when nothing else could. Thank you isn’t enough.”
Donated Bone Saved Chase’s Arm and His Active Childhood
Chase was diagnosed with Osteosarcoma, a bone cancer, one day after his ninth birthday. At the Nebraska Medical Center in Omaha, NE, Dr. Sean McGarry, orthopedic oncologist, discussed the options available to Chase and his family, including amputation of his arm. His family chose limb salvage using donated bone. Dr. McGarry was able to remove the tumor without damaging the growth plates in Chase's arm, then transplant donated bone and secure it with metal hardware. Immediately following his surgery, Chase could move all 5 fingers. Now he can be found playing videogames, riding his bicycle, and playing catch – all things that are done much better with his own arm rather than a prosthetic.
Donor Gifts Help Naomi Reclaim Her Love for Baseball
Children who are born with Down Syndrome have a much higher chance of experiencing soft tissue injuries in their lifetime. Naomi was one of those kids. Her love of baseball was threatened when she could no longer run without her knee caps displacing. Bound to a wheelchair, she no longer participated in the sport she loved. She needed to replace the ligaments in both knees and using her own tissue was not an option. The generous gifts of two donors have given Naomi a new lease on life. Now instead of watching from the sidelines as others enjoy life, she can jump, run and play.
A Hopeful Light
Breanna Fisher has always been an energetic light. Bubbly, brave, and outgoing, the middle schooler loves turtles, playing Legos with her friends, bossing around her little brother, and swimming laps in her local pool. “She’s like any other kid,” Dad smiled, “and she’s always kept us on our toes.” However, when a small pain in her leg revealed a bigger problem, Breanna and her family worried their precious light would be dimmed.
“It started innocent enough,” Dad recalled. “Sometimes, Breanna would complain about a pain in her leg but then go right back to running around. We didn’t think it was anything serious.” One day, after complaining of immense pain and being unable to walk, Breanna was brought home, where her parents discovered a large knob on her right leg. Concerned for her health, they immediately took her to the hospital. There, doctors confirmed the family’s worst nightmare: Breanna had Ewing’s sarcoma, a rare type of cancer. Though shocking, it wouldn’t be the family’s first experience with serious illness. “My wife works for a non-profit organization that serves children with cancer,” Dad explained. “We just never thought our daughter would be one of them. We kept thinking, ‘How are we going to get through this?’”
To treat her, doctors put Breanna on chemo and recommended surgery to remove the tumor and surrounding bone. The operation would involve placing bone from a donor in her right leg. “We hadn’t heard of using donated bone before, but we were willing to try anything,” Dad remembered. “Whatever it took to save her life.”
A few months after surgery, Breanna regained mobility and her bright light. Thanks to the gift from her donor, she continues to spend time with family and friends and looks forward to returning to her favorite activities. “There are still some hurdles to climb, but she’s still with us and smiling,” Dad smiled. As registered donors, Breanna’s family does not take her donor’s sacrifice lightly. They continue to donate and share their story to raise awareness for children’s cancer and tissue donation. In gratitude, their family sent a thank you letter to their donor’s family. “Saying ‘thank you’ doesn’t begin to cover it,” Dad shared. “Without that gift, it might have been impossible for her to move her leg again. Now, she has a chance to get back to her old life, and it’s put a light back in her eyes. Thank you for giving us hope.”
From Kidney Donor to Recipient of a Life-Changing Gift
When his sister needed a kidney transplant, Chris donated one of his kidneys to help her. Ironically, years later, he never imagined that he would be on the receiving end of such a gift. A severe form of spinal stenosis caused Chris so much pain, he could no longer do simple things like type, hold a coffee mug or hug his wife. Donated bone grafts were used to take pressure off his spinal cord and relieve the pain. These days, Chris is experiencing the incredible life altering experience tissue donation has had on his life. He is back to doing things he had once taken for granted like playing catch with his daughters and enjoying the outdoors.
From Innovator to Patient: How Manny’s Work Helped End His Own Pain
Manny suffered from severe neck and shoulder pain for more than 10 years, but a tissue transplant using a spinal tissue graft helped end his suffering. Manny assisted with the development of this tissue graft in his job as a process engineer with MTF. Now, he can swim, play soccer and most importantly, spend quality time with his family, as he is no longer living with chronic pain.
Turing the page: How a Donor’s Gift Helped Carol Regain Her Independence
Like many of the smaller joints of the human body, a deficit in the fingers or thumbs can have a huge impact on independence and function. As a librarian, Carol knows more than anyone about the remarkable range of motion the thumb provides that allows her full dexterity to turn the pages of her beloved books. However, repetitive grasping and pinching can come at a price; the increased risk of osteoarthritis. Carol began to experience the painful symptoms of osteoarthritis in her thumb joint, causing pain and limiting movement. The arthritis affected her thumb joint where the thumb joins the trapezium bone in the wrist and required cortisone shots in order to do the simple things like grabbing and lifting everyday objects. Eventually, the shots no longer worked and the disease progression caused Carol’s thumb to become so damaged that her physician suggested surgery if she did not want to tolerate pain anymore.
Surgical treatments for arthritis typically include the removal of some or all of the arthritic bone and using a piece of the patient’s wrist flexor tendon to stabilize the thumb joint. Usually this surgery involves two surgical sites. In order to streamline the surgical process and eliminate additional surgical sites, Carol’s surgeon used donated human skin grafts where he would normally use Carol’s own tendon. Carol’s surgery, like many of this type of procedure, was successful. Several weeks after she began physical therapy, Carol was back to doing everything she used to be able to do using her thumb. She can grasp things better, like picking up a glass or thumbing through her favorite book. Carol is even looking forward to doing yard work next spring and enjoying time with her delightful nieces.
Carol registered to become a donor many years ago. She was surprised to learn that donated human tissue could be used in surgeries like hers and has since written to her donor’s family to thank them for their gift. Reflecting up this experience, Carol remarks, “My donor has made a valuable contribution to my successful surgery. I will always remember the generosity of this gift.”
From Tragedy to Triumph: Donated Bone Helped Tom Reclaim His Life After a Devastating Accident
A life threatening dirt bike accident left Tom with severe trauma to his upper body, including a broken sternum, shattered jaw and punctured lung. But his most critical injury from the impact with a tree was neck fractures that at first left him partially paralyzed.
After several surgeries, including using Trinity Evolution®, donated human bone with viable stem cells to enhance bone healing in his neck, Tom was able to begin physical therapy and eventually resumed normal activities, including walking and swimming. His wife Nancy comments, “I have my husband back and a quality of life he would not have enjoyed had he been confined to a wheelchair.”
Back in the Game: How Innovative Tissue Grafts Gave Jonathan a Second Chance at an Active Life
Jonathan Williams never imagined that when he began playing football in high school as a linebacker, his days on the field would be short-lived. A football injury resulted in a fracture to his leg and femur. While his femur healed, he soon learned that his knee was deteriorating and his options were artificial implants or donated human tissue grafts. At 18, Jonathan became the first transplant recipient of a biological joint resurfacing technology using the Missouri Osteochondral Preservation System (MOPS), a preservation technique that preserves the life of tissue grafts. Today he's back to doing things he never imagined he could do again - hiking, surfing, and jogging - while he works as a student beside Dr. Jimi Cook, one of the inventors who made his recovery possible.
A Survivor’s Hope: A Journey with Tissue Donation
For Tim Shupe, life’s about living every day to the fullest. A former military nurse, Tim follows his passion for helping others through his work at MTF Biologics. When he’s not working to save and heal lives, the father-of-three loves staying active in the mountains and spending his days outdoors. “I mountain bike, rock climb, ski, and recently have gotten into ultra-running,” he smiled. “It’s become a personal passion.” However, when a tragic accident in the mountains resulted in a harrowing loss and lasting damage to his knee, Tim wondered if he would ever get back to the life he loved.
“It all began in 2021 when some buddies and I were caught in an avalanche while backcountry skiing,” he recalled somberly. “I lost a friend that day and nearly lost my own life… even now, it’s hard to talk about.” The trauma left Tim shaken and in significant pain, eventually leading to a diagnosis of a rotator cuff tear. While undergoing rehab, about three months into recovery, something alarming happened. “I’m an endurance athlete, so I kept training and running marathons,” he explained. “But suddenly, I couldn’t stand. I looked down, and my knee had swollen to the size of a grapefruit.” At the hospital, x-rays revealed that the bone in Tim’s knee had shifted inward, with loose bone fragments causing further damage to the cartilage. Despite doctors recommending a metal implant, Tim was determined to find a better solution.
“I was grateful to have survived my previous accident, and now I was being told that with a metal knee replacement, I would never be able to run ultras again,” he explained. Thinking of his work and his wife’s recent health experience, Tim turned to tissue donation. “When my wife had thyroid cancer, placenta grafts helped her speak and swallow again,” he tearfully remembered. “I knew that donation could help me return to my life too.” After consulting with colleagues with MTF Biologics and sports medicine surgeons, Tim was approved for an osteochondral graft, osteotomy, and alignment surgery using donated bone, cartilage, and meniscus. Unlike a total knee replacement, which uses metal and plastic components, this procedure restores the damaged joint with living cartilage and bone from a donor.
Today, Tim retains his mobility and returns to an active life outdoors. Thanks to the gift from his donor, he continues to run, cycle, and enjoy the work and life he loves. “At one point, I thought I wouldn’t see another day, let alone run again. Now, I'm looking forward to returning to the mountains,” he smiled. As a passionate advocate for organ and tissue donation, Tim is even more grateful for the second chance that his work provides for millions of people like himself. He now uses his and his wife’s story to share the impact of organ and tissue donation. “I’ve always internalized our mission of saving and healing lives, and now I’m one of them. I’m so grateful to have had this experience!”
A Lifelong Impact: A Story of Hope and Gratitude
In the summer of 2002, during what seemed like a perfect vacation in Florida, Brad, an avid mid-distance runner, golfer, and water-skier, faced an unexpected turn of events. A knee injury resulted in the tearing of his ACL tendon, making it seem like the end of his athletic pursuits. The injury and subsequent surgery forever altered his path, yet it also opened doors he never knew existed.
Faced with the prospect of a long recovery, Brad chose an allograft tendon for knee reconstruction, hoping to return to the sports he loved as soon as possible. This decision was only possible because of an incredible act of generosity through the gift of tissue donation.
At that time, Brad was unaware of the profound impact one donor could have on numerous recipients. Today, he not only understands this truth but also lives and breathes it every day through his work with MTF Biologics, the tissue bank that provided the graft for his surgery.
“Thanks to your selfless act, I have been able to continue living an active and fulfilling life,” Brad writes in his letter to his donor family. “I am now married with two teenage daughters and still run, golf, and waterski with my kids. I cherish every moment that your loved one’s gift has afforded me.”
Full Circle of Giving: Hillary's Journey from Tissue Recovery to Recipient
Hillary Gribble has always been passionate about helping others. After working as a dispatcher for both her local police station and humanitarian aid, Hillary transitioned to a career in tissue recovery at LifeCenter NorthWest. “Through donation, I’ve found a whole new way of saving lives,” she smiled. However, when years of joint pain led to a serious diagnosis, Hillary discovered that she would be the one in need.
“I’ve been living with pain since childhood,” she explained. “For as long as I could remember, running, walking, or even standing would cause my joints to pop or shift. At my job, I’d lift things, and suddenly, my shoulder would dislocate. It was awful.” Hillary’s shoulder would dislocate up to ten times a day, causing her severe pain. Eventually, she sought medical help. “For years, doctors couldn’t figure out what it was until I met with an orthopedic surgeon. He referred me to a geneticist, and that’s when I got my diagnosis.” Hillary learned that she had Ehler-Danlos Syndrome, a rare genetic disorder that caused hypermobility and weakened connective tissue. To reduce the dislocations and repair her shoulder, doctors recommended surgery using donated tissue—an idea that thrilled her. “I was still learning about the process, but I remember feeling reassured when my surgeon mentioned using tissue from MTF Biologics. I knew I was in good hands because, in my work, I’ve been involved in recovering tendons myself.”
Today, Hillary enjoys full mobility in her shoulder and hasn’t experienced a single dislocation since surgery! Thanks to the gift from her donor, she continues to do the activities she loves, like hiking, backpacking, camping with her husband and two dogs, and helping others through her work with tissue donation. As a registered donor and now recipient, Hillary enjoys a new-found perspective on her work in tissue recovery. “It’s such a full circle moment,” she shared. “I work every day to recover donated tissue, but I never thought I’d one day need some. It’s been an amazing experience.” When thinking of her donor, Hillary can’t help but express her gratitude to her donor’s family and donor families everywhere. “They did such a selfless thing. My donor’s family didn’t know me, but because of them, I’m able to keep helping people in my work. I’m so grateful to them and everyone else who made that incredible decision.”
A Mission of Service: From Marine to Tissue Recipient
After years of dedicated service in the Marine Corps, Michael Kause found a new calling in organ and tissue donation through MTF Biologics, where he has worked in medical sales for over two decades. For Michael, this role is more than just a job—it’s a mission. “It’s another way of changing people’s lives,” shared the husband, grandfather, and proud advocate for donation.
However, Michael’s life took an unexpected turn when a routine PSA screening raised alarm. “I’ve always been diligent about getting my annual screening—it’s just a simple blood test,” Michael said. But when a follow-up test suggested he likely had prostate cancer, his world was shaken. Following a successful surgery to remove the cancer, Michael faced a surprising complication: a painful, bulging hernia near his abdomen.
“I jokingly nicknamed it ‘Kuato,’ like the character from Total Recall,” Michael recalled with a smile. Doctors recommended surgery, noting that the best solution involved a dermis graft from donated tissue. “When I learned they would use MTF tissue, I knew I was in good hands,” Michael said confidently.
Today, Michael is cancer-free and hernia-free, enjoying life to the fullest with his young grandson. His experience as both a tissue recipient and a donation advocate has only deepened his commitment to the cause. “I always encourage people to get screened for prostate cancer and to consider donation,” he shared. “This journey has made me even more passionate about the work we do.”
Reflecting on his donor’s gift and the impact it’s had, Michael’s gratitude is clear. “I can't thank my donor family enough for their sacrifice. Being a part of their story, and the stories of other donor families is something I’m incredibly grateful for.”
Full Circle: A Leader’s Journey from Advocate to Grateful Recipient
As President and CEO of MTF Biologics, Joe Yaccarino never imagined he would be on the receiving end of his work. For over 25 years, Joe selflessly served MTF Biologics through employee and leadership roles. Those around him know that his passion for the gift of donation isn’t just professional but evident in his everyday life. When he’s not actively helping to save and heal lives, Joe – a fun-loving guy that loves studying languages, enjoys going to the gym, spending time with his family, and rocking out on stage as the lead singer of the MTF Biologics residential band, The Bone Tones. “I’m a pretty active guy,” Joe laughed, “and I absolutely love what I do.” However, when a degenerative disease began to threaten his way of life, Joe soon learned that he would deepen his connection to the donation world.
For years, Joe experienced neck pain and balance problems that he’d often ignore. He noticed the pain was worsening even with physical therapy and injection treatments. “It got to the point where I was in really rough shape,” he recalled. “I couldn’t exercise anymore, and I couldn’t focus. As the leader of this wonderful organization, I need to function at my absolute best.” After seeking medical help, surgeons confirmed Joe was experiencing degenerative spine disease and spinal stenosis. “My spinal column had narrowed, my discs were herniated, and I had developed bone spurs,” Joe explained. “It scared me because I knew this wasn’t something that was going to go away.” Finally, Joe accepted the reality of corrective surgery. When told he would require donated tissue, Joe knew he could trust the miracle of donation to help him heal. In 2022, Joe underwent open-door laminoplasty surgery using none other than MTF Biologics high-quality tissue.
Today, Joe returns to serving MTF biologics with a deeper appreciation for his work and passion. Thanks to his donor's gift, he is back to activity, back onstage, and most importantly, back to full focus on leading MTF Biologics in helping others. As a registered donor, passionate advocate of donation, and now a tissue recipient, Joe is thrilled to share his story and the positive impact of organ and tissue donation. “My goal has always been for others to know that donation helps people,” Joe smiled, “now, when I tell my story, it comes full circle and it’s extremely gratifying.” When asked what he would say to his donor family, Joe couldn’t stop the emotions as he shared: “Words aren’t enough. They’ve reminded me what this is all about: helping recipients, families, and everyone involved in donation. I’m forever grateful for their selfless gift.”